Living Wills Helpful, but Unlikely to Solve Most End-of-Life Dilemmas
Living Will Dilemmas
Feb. 21, 2001 -- Ten years ago, Christina
Puchalski's fiance was dying. In the weeks and months prior to his death, her
fiance, a physician, had told her that he was too terrified to face it. He had
told her that, when the time came, he would swallow some pills.
"On the night he was dying," Puchalski, also a
physician, recalls, "I stood by his bed and told him, 'You can get more morphine, and you don't have to
suffer through this.' But he looked up at me and said, 'I want to be alert to
the very end.'"
Puchalski's story is a powerful illustration of the
unpredictable nature of a person's needs and wants as he or she approaches the
ultimate unknown. It also illustrates the limitations of legally required
advance directives, commonly known as living wills, in communicating to
physicians and family members how people should be cared for in their last
Two studies in the Feb. 12 issue of Archives of Internal
Medicine demonstrate that living wills -- sometimes completed by patients
long before they are dying -- frequently fail to capture the complex
life-and-death decisions that accompany end-of-life care, according to author
William D. Smucker, MD.
"I think the value of [a living will], in and of itself, is
minimal," Smucker tells WebMD. "But I think the value of a discussion
between a patient and a physician is maximal. If people believe having [a
living will] is going to improve communication at a later date, or [prevent]
the need for those discussions, they are mistaken."
Smucker is associate director at the Summa Health System Family
Practice Residency Program in Akron, Ohio.
In the first study, 400 outpatients over age 65 and their
self-designated surrogate decision makers were randomly assigned to experiments
in which the family members tried to predict what the patients would want in
life-and-death situations with or without a living will. In none of the
scenarios -- in which patients and family members had options for
life-sustaining treatments for a variety of medical conditions -- did a living
will improve family members' ability to predict what their loved ones would
A second report found similar results when 24 physicians tried
to predict patients' wishes for end-of-life care with and without a living
will. In that study, the ability of primary care physicians to predict the
wishes of more than 80 elderly participants was not improved either with a
scenario-based living will -- in which patients could choose from treatment
options for a range of medical conditions -- or with a value-based living will,
according to the results.
Smucker and others say the complexities of modern medical care
and the very fluid nature of the process of dying -- in which patients can be
skirting death one minute and relatively safe the next -- makes it nearly
impossible for a technical document to capture all the possibilities.