The following list indicates a range of care that may be needed by your loved one. Caregiving responsibilities may be too big to be managed by only one primary caregiver. This list of activities is provided to help you determine your loved ones' needs and to discuss as a family how those needs can best be met -- without draining the primary caregiver.
Things to Do
Who Can Help?/How Often?
Changing bed linen...
Did a particular event cause you to make the decision?
Did an article you read in the newspaper or something that happened to a
family member make you think about it?
Is the decision part of a broader effort on your part to prepare for the
end of life, for instance making your last will and testament for distribution
of your property?
What is motivating you to take these actions now?
Sometimes sharing your personal concerns and values, your spiritual beliefs,
or your views about what makes life worth living can be as helpful to your
agent as talking about specific treatments and circumstances. For example:
How important is it to be to be physically independent and to stay in your
own home? Independence can be extremely important to some and maybe less
important to others.
What aspects of your life give it the most meaning?
How important would it be for you to be able to recognize people or
interact with them?
What are your particular concerns about dying? About death?
How do your religious or spiritual beliefs affect your attitudes toward
dying and death? Would you want your agent to take into account the effect of
your illness on any other people?
Should financial concerns enter into decisions about your treatment?
Would you prefer to die at home if possible?
These are not simple questions and your views may change. It is important
that you review these issues with your agent from time to time.
WebMD Medical Reference from the National Hospice and Palliative Care Organization