The American Hemochromatosis Society is a nonprofit organization that provides general information about hemochromatosis and genetic testing for this condition. Educational brochures are available, as well as a newsletter, physician referrals, an online support group, and medical information.

The Iron Disorders Institute (IDI) is a nonprofit health agency founded in 1996. The IDI provides information about disorders of iron such as hemochromatosis, acquired iron overload , sickle cell anemia, juvenile hemochromatosis, African siderosis, thalassemia, porphyria cutanea tarda, sideroblastic anemia, iron deficiency anemia, and anemia of chronic disease.

This clearinghouse is a service of the U.S. National Institute of Diabetes and Digestive and Kidney Diseases (NIDDK), part of the U.S. National Institutes of Health. The clearinghouse answers questions; develops, reviews, and sends out publications; and coordinates information resources about digestive diseases. Publications produced by the clearinghouse are reviewed carefully for scientific accuracy, content, and readability.