There may be reasons you would
choose not to have carrier testing.
You think that your risk of being a carrier is low. This
may be true if you are of African or Asian descent. Fewer people
in these groups have hereditary hemochromatosis.
is expensive. You may decide not to have testing if your insurance does not pay
Testing is not always able to predict if you will have
hereditary hemochromatosis. Although the test detects the most common
hemochromatosis gene (HFE) mutations, there may be other HFE mutations that the
test does not detect. There is a small chance that you are a carrier even if
the results are normal because there may be other HFE mutations that the test
does not find. HFE gene testing is usually not used to check for other, less
common causes of inherited hemochromatosis.