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Hemophilia

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Organizations

Centers for Disease Control and Prevention (CDC): Hemophilia
1600 Clifton Road
MS E-87
Atlanta, GA 30333
Phone: 1-800-CDC-INFO (1-800-232-4636)
TDD: 1-888-232-6348
Email: cdcinfo@cdc.gov
Web Address: www.cdc.gov/ncbddd/hemophilia/index.html
 

This CDC website has information about hemophilia. This includes information on treatment, blood safety, and inhibitors. You can access free educational materials and videos. There is information on living well, finding medical care, finding a support network, and preparing for an emergency. The website also helps you find the hemophilia treatment center that is closest to you.


Genetics Home Reference, U.S. National Library of Medicine
8600 Rockville Pike
Bethesda, MD  20894
Phone: 1-888-FIND-NLM (1-888-346-3656)
Fax: (301) 402-1384
TDD: 1-800-735-2258
Web Address: www.ghr.nlm.nih.gov
 

The Genetics Home Reference provides information on hundreds of genetic conditions. The website has many tools for learning about human genetics and the way genetic changes can cause disease. It also has links to additional resources for people who have genetic conditions and for their families.


KidsHealth for Parents, Children, and Teens
Nemours Home Office
10140 Centurion Parkway
Jacksonville, FL 32256
Phone: (904) 697-4100
Web Address: www.kidshealth.org
 

This website is sponsored by the Nemours Foundation. It has a wide range of information about children's health—from allergies and diseases to normal growth and development (birth to adolescence). This website offers separate areas for kids, teens, and parents, each providing age-appropriate information that the child or parent can understand. You can sign up to get weekly emails about your area of interest.


National Heart, Lung, and Blood Institute (NHLBI)
P.O. Box 30105
Bethesda, MD  20824-0105
Phone: (301) 592-8573
Fax: (240) 629-3246
TDD: (240) 629-3255
Email: nhlbiinfo@nhlbi.nih.gov
Web Address: www.nhlbi.nih.gov
 

The U.S. National Heart, Lung, and Blood Institute (NHLBI) information center offers information and publications about preventing and treating:


National Hemophilia Foundation (NHF)
116 West 32nd Street, 11th Floor
New York, NY  10001
Phone: (212) 328-3700
Fax: (212) 328-3777
Email: HANDI@hemophilia.org
Web Address: www.hemophilia.org
 

The National Hemophilia Foundation (NHF) is dedicated to the cures of inherited bleeding disorders and the prevention and treatment of their complications through education, advocacy, and research. The NHF has chapters throughout the country and a communications network that brings health professionals and the public the latest news about bleeding disorders. NHF's Web site provides information on the nature, symptoms, and treatments of many disorders.


World Federation of Hemophilia
1425 René Lévesque Boulevard West
Suite 1010
Montréal, QC  H3G 1T7 Canada
Phone: (514) 875-7944
Fax: (514) 875-8916
Email: wfh@wfh.org
Web Address: www.wfh.org
 

The World Federation of Hemophilia works to introduce, improve, and maintain care for people with hemophilia and related bleeding disorders around the world. The WFH provides various health care development programs and publications. The Web site provides general information on the disease, as well as research updates. Links to other organizations and further research resources are also listed.


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WebMD Medical Reference from Healthwise

Last Updated: August 03, 2011
This information is not intended to replace the advice of a doctor. Healthwise disclaims any liability for the decisions you make based on this information.
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