Hemophilia

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Organizations

Genetics Home Reference, U.S. National Library of Medicine
8600 Rockville Pike
Bethesda, MD 20894
Phone:	1-888-FIND-NLM (1-888-346-3656)
Fax:	(301) 402-1384
TDD:	1-800-735-2258
Email:	custserv@nlm.nih.gov
Web Address:	www.ghr.nlm.nih.gov

The Genetics Home Reference provides information on hundreds of genetic conditions. The Web site has many tools for learning about human genetics and the way genetic changes can cause disease. It also has links to additional resources for people who have genetic conditions and for their families.

KidsHealth for Parents, Children, and Teens
10140 Centurion Parkway North
Jacksonville, FL 32256
Phone:	(904) 697-4100
Fax:	(904) 697-4125
Web Address:	www.kidshealth.org

This Web site is sponsored by the Nemours Foundation. It has a wide range of information about children's health, from allergies and diseases to normal growth and development (birth to adolescence). This Web site offers separate areas for kids, teens, and parents, each providing age-appropriate information that the child or parent can understand. You can sign up to get weekly e-mails about your area of interest.

National Heart, Lung, and Blood Institute (NHLBI)
P.O. Box 30105
Bethesda, MD 20824-0105
Phone:	(301) 592-8573
Fax:	(240) 629-3246
TDD:	(240) 629-3255
Email:	nhlbiinfo@nhlbi.nih.gov
Web Address:	www.nhlbi.nih.gov

The U.S. National Heart, Lung, and Blood Institute (NHLBI) information center offers information and publications about preventing and treating: Diseases affecting the heart and circulation, such as heart attacks, high cholesterol, high blood pressure, peripheral artery disease, and heart problems present at birth (congenital heart diseases). Diseases that affect the lungs, such as asthma, chronic obstructive pulmonary disease (COPD), emphysema, sleep apnea, and pneumonia. Diseases that affect the blood, such as anemia, hemochromatosis, hemophilia, thalassemia, and von Willebrand disease.

National Hemophilia Foundation (NHF)
116 West 32nd Street, 11th Floor
New York, NY 10001
Phone:	(212) 328-3700
Fax:	(212) 328-3777
Email:	HANDI@hemophilia.org
Web Address:	www.hemophilia.org

The National Hemophilia Foundation (NHF) is dedicated to the cures of inherited bleeding disorders and the prevention and treatment of their complications through education, advocacy, and research. The NHF has chapters throughout the country and a communications network that brings health professionals and the public the latest news about bleeding disorders. NHF's Web site provides information on the nature, symptoms, and treatments of many disorders.

World Federation of Hemophilia
1425 René Lévesque Boulevard West
Suite 1010
Montréal, QC H3G 1T7 Canada
Phone:	(514) 875-7944
Fax:	(514) 875-8916
Email:	wfh@wfh.org
Web Address:	www.wfh.org

The World Federation of Hemophilia works to introduce, improve, and maintain care for people with hemophilia and related bleeding disorders around the world. The WFH provides various health care development programs and publications. The Web site provides general information on the disease, as well as research updates. Links to other organizations and further research resources are also listed.

WebMD Medical Reference from Healthwise

Last Updated: February 10, 2011

This information is not intended to replace the advice of a doctor. Healthwise disclaims any liability for the decisions you make based on this information.