This information is provided as a resource and does not constitute an endorsement for any group. It is the responsibility of the reader to decide whether a group is appropriate for his/her needs. For evidence-based information on diseases, conditions, symptoms, treatment and wellness issues, continue searching this site.
National. 82 groups. Founded 1969. Provides information, education and mutual support for kidney patients, their families and friends. Has 82 local community support groups. Membership includes those with rediced kidney function, as well as dialysis and transplant patients. Als provides educational materials, bi-monthly magazine, three electronic newsletters, and an annual patient meeting. If you need to start a new local support group, contact them and ask for their 'Support Group Guidebook' for developing an independent patient support group.
American Assn. of Kidney Patients
2701 N. Rocky Point Drive, Ste 150
Tampa, FL 33607
Voice: 1-800-749-2257 or 813-636-8100
International. 55 volunteer Friends chapters. Founded 1982. Funds research and provides emotional support and education for people with polycystic kidney disease and their families. Promotes public awareness. Holds medical seminars and fund-raisers. Newsletters and online educational tools.
8330 Ward Parkway, Ste. 400
Kansas City, MO 64114
Voice: 1-800-753-2873 or 816-931-2600