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Multiple Endocrine Neoplasia Type 1

It is possible that the main title of the report Multiple Endocrine Neoplasia Type 1 is not the name you expected. Please check the synonyms listing to find the alternate name(s) and disorder subdivision(s) covered by this report.


Disorder Subdivisions

  • None

General Discussion

Multiple endocrine neoplasia (MEN) type 1 is a rare genetic disorder in which benign (noncancerous) tumors arise from the cells of various glands of the endocrine system. The endocrine system is the network of glands that secrete hormones into the bloodstream where they travel to various areas of the body. These hormones regulate the chemical processes (metabolism) that influence the function of various organs and activities within the body. Hormones are involved in numerous vital processes including regulating heart rate, body temperature and blood pressure as well as cell differentiation and growth and also in modulation of several metabolic processes. In individuals with MEN type 1, benign tumors develop in multiple endocrine glands, most often the parathyroid, pancreas and pituitary glands. These affected glands secrete excessive amounts of hormones into the bloodstream, which can result in a variety of symptoms. Some benign tumors associated with MEN type 1 can become malignant (cancerous). MEN type 1 can run in families or can occur as the result of a new gene mutation in the affected person.


Pituitary Network Association
P.O. Box 1958
Thousand Oaks, CA 91358
Tel: (805)499-9973
Fax: (805)480-0633

American Cancer Society, Inc.
250 Williams NW St
Ste 6000
Atlanta, GA 30303
Tel: (404)320-3333
Tel: (800)227-2345
TDD: (866)228-4327

NIH/National Institute of Diabetes, Digestive & Kidney Diseases
Office of Communications & Public Liaison
Bldg 31, Rm 9A06
31 Center Drive, MSC 2560
Bethesda, MD 20892-2560
Tel: (301)496-3583

Canadian Multiple Endocrine Neoplasia Society, Inc.
1432 107th Street
North Battleford, S9A 19
Tel: 3064458436
Fax: 3064458436

Carcinoid Cancer Foundation
333 Mamaroneck Avenue #492
White Plains, NY 10605
Tel: (914)683-1001
Fax: (914)683-0183
Tel: (888)722-3132

Hormone Health Network
8401 Connecticut Avenue
Suite 900
Chevy Chase, MD 20815-5817
Fax: (310)941-0259
Tel: (800)467-6663

Pituitary Foundation
PO Box 1944
Bristol, BS99 2UB
United Kingdom
Tel: 08454500376
Fax: 01179330910
Tel: 08454500375

Association for Multiple Endocrine Neoplasia Disorders (AMEND)
The Warehouse
No. 1 Draper Street
Royal Tunbridge Wells
Kent, TN4 0PG
United Kingdom
Tel: 00441892516076
Fax: 00441892516076

NET Patient Foundation
Boxtrees Farm
The Farm House
Stratford Road
Hockley Heath, B94 6EA
United Kingdom
Tel: 08004346476

American Multiple Endocrine Neoplasia Support
1027 Hampshire Drive
Maryville, TN 37801
Tel: (865)238-5872
Fax: (865)238-5844
Tel: (866)612-8579

Pheo Para Troopers
P.O. Box 2064
Kokomo, IN 46904

Hageman Foundation
1027 Hampshire Drive
Maryville, TN 37801
Tel: (865)238-5842
Fax: (865)238-5844
Tel: (866)612-8579

For a Complete Report:

This is an abstract of a report from the National Organization for Rare Disorders (NORD). A copy of the complete report can be downloaded free from the NORD website for registered users. The complete report contains additional information including symptoms, causes, affected population, related disorders, standard and investigational therapies (if available), and references from medical literature. For a full-text version of this topic, go to and click on Rare Disease Database under "Rare Disease Information".

The information provided in this report is not intended for diagnostic purposes. It is provided for informational purposes only. NORD recommends that affected individuals seek the advice or counsel of their own personal physicians.

It is possible that the title of this topic is not the name you selected. Please check the Synonyms listing to find the alternate name(s) and Disorder Subdivision(s) covered by this report

This disease entry is based upon medical information available through the date at the end of the topic. Since NORD's resources are limited, it is not possible to keep every entry in the Rare Disease Database completely current and accurate. Please check with the agencies listed in the Resources section for the most current information about this disorder.

For additional information and assistance about rare disorders, please contact the National Organization for Rare Disorders at P.O. Box 1968, Danbury, CT 06813-1968; phone (203) 744-0100; web site or email

Last Updated: 5/7/2012
Copyright 2009, 2012 National Organization for Rare Disorders, Inc.

WebMD Medical Reference from the National Organization for Rare Disorders

Last Updated: May 28, 2015
This information is not intended to replace the advice of a doctor. Healthwise disclaims any liability for the decisions you make based on this information.

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