Skip to content
    Font Size
    A
    A
    A

    Multiple Endocrine Neoplasia Type 1

    Important
    It is possible that the main title of the report Multiple Endocrine Neoplasia Type 1 is not the name you expected. Please check the synonyms listing to find the alternate name(s) and disorder subdivision(s) covered by this report.

    Synonyms

    Disorder Subdivisions

    • None

    General Discussion

    Multiple endocrine neoplasia (MEN) type 1 is a rare genetic disorder in which benign (noncancerous) tumors arise from the cells of various glands of the endocrine system. The endocrine system is the network of glands that secrete hormones into the bloodstream where they travel to various areas of the body. These hormones regulate the chemical processes (metabolism) that influence the function of various organs and activities within the body. Hormones are involved in numerous vital processes including regulating heart rate, body temperature and blood pressure as well as cell differentiation and growth and also in modulation of several metabolic processes. In individuals with MEN type 1, benign tumors develop in multiple endocrine glands, most often the parathyroid, pancreas and pituitary glands. These affected glands secrete excessive amounts of hormones into the bloodstream, which can result in a variety of symptoms. Some benign tumors associated with MEN type 1 can become malignant (cancerous). MEN type 1 can run in families or can occur as the result of a new gene mutation in the affected person.

    Resources

    Pituitary Network Association
    P.O. Box 1958
    Thousand Oaks, CA 91358
    USA
    Tel: (805)499-9973
    Fax: (805)480-0633
    Email: info@pituitary.org
    Internet: http://www.pituitary.org

    American Cancer Society, Inc.
    250 Williams NW St
    Ste 6000
    Atlanta, GA 30303
    USA
    Tel: (404)320-3333
    Tel: (800)227-2345
    TDD: (866)228-4327
    Internet: http://www.cancer.org

    NIH/National Institute of Diabetes, Digestive & Kidney Diseases
    Office of Communications & Public Liaison
    Bldg 31, Rm 9A06
    31 Center Drive, MSC 2560
    Bethesda, MD 20892-2560
    Tel: (301)496-3583
    Email: NDDIC@info.niddk.nih.gov
    Internet: http://www2.niddk.nih.gov/

    Canadian Multiple Endocrine Neoplasia Society, Inc.
    1432 107th Street
    North Battleford, S9A 19
    Canada
    Tel: 3064458436
    Fax: 3064458436
    Email: hockey_freak99@hotmail.com

    Carcinoid Cancer Foundation
    333 Mamaroneck Avenue #492
    White Plains, NY 10605
    USA
    Tel: (914)683-1001
    Fax: (914)683-0183
    Tel: (888)722-3132
    Email: carcinoid@optonline.net
    Internet: http://www.carcinoid.org

    Hormone Health Network
    8401 Connecticut Avenue
    Suite 900
    Chevy Chase, MD 20815-5817
    Fax: (310)941-0259
    Tel: (800)467-6663
    Email: hormone@endo-society.org
    Internet: http://www.hormone.org/

    Pituitary Foundation
    PO Box 1944
    Bristol, BS99 2UB
    United Kingdom
    Tel: 08454500376
    Fax: 01179330910
    Tel: 08454500375
    Email: helpline@pituitary.org.uk
    Internet: http://www.pituitary.org.uk

    Association for Multiple Endocrine Neoplasia Disorders (AMEND)
    The Warehouse
    No. 1 Draper Street
    Royal Tunbridge Wells
    Kent, TN4 0PG
    United Kingdom
    Tel: 00441892516076
    Fax: 00441892516076
    Email: jo.grey@amend.org.uk
    Internet: http://www.amend.org.uk

    NET Patient Foundation
    Boxtrees Farm
    The Farm House
    Stratford Road
    Hockley Heath, B94 6EA
    United Kingdom
    Tel: 08004346476
    Internet: http://www.netpatientfoundation.org

    American Multiple Endocrine Neoplasia Support
    1027 Hampshire Drive
    Maryville, TN 37801
    Tel: (865)238-5872
    Fax: (865)238-5844
    Tel: (866)612-8579
    Email: Linda@hagemanfoundation.org
    Internet: http://www.amensupport.org

    Pheo Para Troopers
    P.O. Box 2064
    Kokomo, IN 46904
    Email: info@pheoparatroopers.org
    Internet: http://www.pheoparatroopers.org

    Hageman Foundation
    1027 Hampshire Drive
    Maryville, TN 37801
    Tel: (865)238-5842
    Fax: (865)238-5844
    Tel: (866)612-8579
    Email: Info@HagemanFoundation.org
    Internet: http://www.HagemanFoundation.org

    For a Complete Report:

    This is an abstract of a report from the National Organization for Rare Disorders (NORD). A copy of the complete report can be downloaded free from the NORD website for registered users. The complete report contains additional information including symptoms, causes, affected population, related disorders, standard and investigational therapies (if available), and references from medical literature. For a full-text version of this topic, go to www.rarediseases.org and click on Rare Disease Database under "Rare Disease Information".

    The information provided in this report is not intended for diagnostic purposes. It is provided for informational purposes only. NORD recommends that affected individuals seek the advice or counsel of their own personal physicians.

    It is possible that the title of this topic is not the name you selected. Please check the Synonyms listing to find the alternate name(s) and Disorder Subdivision(s) covered by this report

    This disease entry is based upon medical information available through the date at the end of the topic. Since NORD's resources are limited, it is not possible to keep every entry in the Rare Disease Database completely current and accurate. Please check with the agencies listed in the Resources section for the most current information about this disorder.

    For additional information and assistance about rare disorders, please contact the National Organization for Rare Disorders at P.O. Box 1968, Danbury, CT 06813-1968; phone (203) 744-0100; web site www.rarediseases.org or email orphan@rarediseases.org

    Last Updated: 5/7/2012
    Copyright 2009, 2012 National Organization for Rare Disorders, Inc.

    WebMD Medical Reference from the National Organization for Rare Disorders

    Last Updated: May 28, 2015
    This information is not intended to replace the advice of a doctor. Healthwise disclaims any liability for the decisions you make based on this information.

    Hot Topics

    WebMD Video: Now Playing

    Click here to wach video: Dirty Truth About Hand Washing

    Which sex is the worst about washing up? Why is it so important? We’ve got the dirty truth on how and when to wash your hands.

    Click here to watch video: Dirty Truth About Hand Washing

    Popular Slideshows & Tools on WebMD

    disciplining a boy
    Types, symptoms, causes.
    fruit drinks
    Eat these to think better.
    Balding man in mirror
    Treatments & solutions.
    No gym workout
    Moves to help control blood sugar.
    Remember your finger
    Are you getting more forgetful?
    acupuncture needle on shoulder
    10 tips to look and feel good.
    Close up of eye
    12 reasons you're distracted.
    birth control pills
    Which kind is right for you?
    embarrassed woman
    Do you feel guilty after eating?
    woman biting a big ice cube
    Habits that wreck your teeth.
    pacemaker next to xray
    Treatment options.
    Pink badge on woman chest to support breat cancer
    Myths and facts.

    Pollen counts, treatment tips, and more.

    It's nothing to sneeze at.

    Loading ...

    Sending your email...

    This feature is temporarily unavailable. Please try again later.

    Thanks!

    Now check your email account on your mobile phone to download your new app.

    Women's Health Newsletter

    Find out what women really need.