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Myositis

This information is provided as a resource and does not constitute an endorsement for any group. It is the responsibility of the reader to decide whether a group is appropriate for his/her needs. For evidence-based information on diseases, conditions, symptoms, treatment and wellness issues, continue searching this site.

The Myositis Association

International network. 65 groups. Founded 1993. Dedicated to serving those with polymyositis, dermatomyositis, juvenile myositis and inclusion body myositis. Provides education and support. Also serves as a clearinghouse between patients and scientists. Newsletter, research reviews, literature and phone support. Area meetings available in limited areas, as well as annual conference. Guidelines available for starting similar groups. Fundraising for research. Dues $35/yr.
Write:
Myosistis Association of America
1737 King St. Suite 600
Alexandria, VA 22314
Fax: 202-466-8940
Website: http://www.myositis.org
E-mail: tma@myositis.org
Verified: 9/13/2013

Myositis Online Support Group

Online. Provides a community of support for patients affected my myositis. Site includes groups, blogs, forums and more.
Website: http://www.myositissupport.org
Verified: 7/26/2013

WebMD Medical Reference from the American Self-Help Clearinghouse

Last Updated: September 04, 2014
This information is provided as a resource and does not constitute an endorsement for any group.  It is the responsibility of the reader to decide whether a group is appropriate for his/her needs.  For evidence-based information on diseases, conditions, symptoms, treatment and wellness issues, continue searching this site.This information is not intended to replace the advice of a doctor. Healthwise disclaims any liability for the decisions you make based on this information.   

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