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Myotubular Myopathy

This information is provided as a resource and does not constitute an endorsement for any group. It is the responsibility of the reader to decide whether a group is appropriate for his/her needs. For evidence-based information on diseases, conditions, symptoms, treatment and wellness issues, continue searching this site.

Myotubular Myopathy Resource Group

International network. Founded 1993. Information for patients, parents and doctors regarding myotubular myopathy, a family of three rare muscle disorders usually causing low muscle tone and diminished respiratory capacity. Exchanging of successes with other affected families. Phone support, literature, information and referrals.
Write:
Myotubular Myopathy Resource Group
c/o Pam Scoggin
2602 Quaker Dr.
Texas City, TX 77590
Voice: 409-945-8569
Fax: 409-452-2162
Website: http://www.mtmrg.org
E-mail: myopaty@optonline.net
Verified: 4/5/2012

WebMD Medical Reference from the American Self-Help Clearinghouse

Last Updated: February 25, 2014
This information is provided as a resource and does not constitute an endorsement for any group.  It is the responsibility of the reader to decide whether a group is appropriate for his/her needs.  For evidence-based information on diseases, conditions, symptoms, treatment and wellness issues, continue searching this site.This information is not intended to replace the advice of a doctor. Healthwise disclaims any liability for the decisions you make based on this information.   

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