Sickle Cell Disease
Other Places To Get Help
Online Resource
| Sickle Cell Disease Interactive Web site | |
| SickleCellKids.org | |
| Web Address: | http://www.sicklecellkids.org |
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This interactive, colorful Web site has quizzes, games, and other information to help children with sickle cell disease take care of themselves. |
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Organizations
| American Academy of Family Physicians | |
| P.O. Box 11210 | |
| Shawnee Mission, KS 66207-1210 | |
| Web Address: | www.familydoctor.org |
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The American Academy of Family Physicians produces a variety of health-related educational materials. Its Web site offers a health library and bulletin board, news, and comments sections. |
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| American Pain Foundation | |
| 201 N. Charles Street | |
| Suite 710 | |
| Baltimore, Maryland 21201-4111 | |
| Phone: | 1-888-615-PAIN (1-888-615-7246) |
| E-mail: | info@painfoundation.org |
| Web Address: | http://www.painfoundation.org |
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The American Pain Foundation is an independent, nonprofit organization serving people with pain through information, advocacy, and support. Its mission is to improve the quality of life for people with pain by raising public awareness, providing practical information, promoting research, and advocating to remove barriers and increase access to effective pain management. The foundation encourages people with pain to learn all they can about pain and pain management treatment options, become their own best advocates, and demand the treatment they need and deserve. |
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| March of Dimes | |
| 1275 Mamaroneck Avenue | |
| White Plains, NY 10605 | |
| Phone: | (914) 997-4488 |
| Web Address: | www.marchofdimes.com |
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The March of Dimes tries to improve the health of babies by preventing birth defects, premature birth, and early death. March of Dimes supports research, community services, education, and advocacy to save babies' lives. The organization's Web site has information on premature birth, birth defects, birth defects testing, pregnancy, and prenatal care. You can sign up to get a free newsletter and also explore Understanding Your Newborn: An Interactive Program for New Parents. |
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| National Heart, Lung, and Blood Institute (NHLBI) | |
| P.O. Box 30105 | |
| Bethesda, MD 20824-0105 | |
| Phone: | (301) 592-8573 |
| Fax: | (240) 629-3246 |
| TDD: | (240) 629-3255 |
| E-mail: | nhlbiinfo@nhlbi.nih.gov |
| Web Address: | www.nhlbi.nih.gov |
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The U.S. National Heart, Lung, and Blood Institute (NHLBI) information center offers information and publications about preventing and treating heart, lung, and blood diseases. |
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| Sickle Cell Disease Association of America (SCDAA) | |
| 231 East Baltimore Street | |
| Suite 800 | |
| Baltimore, MD 21202 | |
| Phone: | 1-800-421-8453 (410) 528-1555 |
| Fax: | (410) 528-1495 |
| E-mail: | scdaa@sicklecelldisease.org |
| Web Address: | http://www.sicklecelldisease.org |
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The Sickle Cell Disease Association of America is a national membership organization that provides education, research updates, and support around sickle cell disease problems. Its Web site has the Sickle Cell Disease Forum for people of all ages to discuss concerns about sickle cell disease. |
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WebMD Medical Reference from Healthwise



