Regular checkups are an important
part of life with this disease. People with sickle cell disease need a good
working relationship with a doctor who is an expert in treating it.
How do you manage life with sickle cell disease?
Learn what triggers, or sets off, painful events. Triggers often
include cold temperatures, wind, dehydration, and too much exercise. Low oxygen caused
by cigarette smoke, high altitude, and plane flights is another common trigger.
Make sure that your child takes antibiotics regularly until age 5
to prevent infections. And make sure he or she receives all the usual
immunizations on schedule.
Your child can take part in normal school activities. Make sure
that teachers understand your child’s special needs, like needing frequent
drinks and bathroom trips and avoiding overexertion and cold
People with sickle cell disease and their families face ongoing
stress. A support network can help ease stress and worry. Ask your doctor if
there is a support group in your area. You can also find websites on the
Internet where you can ask questions, share your feelings, and get