urostomy is an opening in the abdomen created by a surgical procedure (radical cystectomy) to allow urine
to flow to the outside of the body. This may be needed when a diseased or damaged bladder has to be removed. Part of
the ureters may also be removed. A small segment of the small or large
intestine is used to create the channel (a urinary diversion).
Wound, ostomy, and continence nurses (WOCNs) are available in some
medical centers to help you learn how to care for your ostomy. Talk with your
surgeon about meeting with a WOCN after your surgery.
It is possible that the main title of the report Polycystic Kidney Disease, Autosomal Dominant is not the name you expected. Please check the synonyms listing to find the alternate name(s) and disorder subdivision(s) covered by this report.
It takes time to adjust to having a urostomy. But you will be
able to work, participate in sports and physical activities, be intimate with
your partner, and resume your social life after surgery.
Immediately after your surgery, activities such as driving and
lifting will be restricted to allow the stoma to heal. After 2 to 3 weeks, you
should be able to resume normal activities. Noncontact activities, such as
swimming, hiking, camping, and tennis, should be no problem. If you had an
exercise routine, talk to your doctor about when you can restart
it and whether it is possible to participate in contact sports, such as
football, karate, and basketball, which could result in injury to the
Your work should not be affected. The only types of work that you may
not be able to perform are those that require heavy lifting or physical
contact. Talk with your doctor to learn about any occupational
limitations you may need to know about.
Usually you will have no dietary restrictions and foods can be
enjoyed as before. You should drink 8 to 10 glasses of fluid each day to help
decrease the chance of kidney infection.
Many of the problems relating to intimacy may be more emotional than
physical. You may be concerned with ability, body image, and what others think.
Talk to your doctor, counselor, or a therapist for help coping with
any problems concerning intimacy or your self-image.
You will probably be able to wear the same clothing. Tight clothes
will not hurt your stoma. If you have trouble hiding your ostomy pouch, or if
it shows through your clothing, your WOCN may have suggestions.
You can continue to travel. Empty or change your ostomy pouch before
beginning your trip. When traveling by plane, bring extra ostomy supplies in
your carry-on baggage, not checked baggage. If traveling by car, store your
supplies in a cool place.
Caring for your ostomy
You want to keep your quality of life, and understanding how to
care for your ostomy will help you live comfortably with it.
When you have an ostomy, urine leaves your body through the stoma
instead of the urethra. Since there is no muscle around the stoma, you are not
able to control when urine passes out of your body. An odor-proof plastic pouch
(ostomy pouch) surrounds the stoma to collect the urine and is held to your
skin with an adhesive. Pouching systems may be one-piece or two-piece.
In a two-piece system, the pouch and barrier
(sometimes called a flange or wafer) are separate. The pouch contains a closing
ring that attaches it to the barrier. This is generally a snap ring, similar to
those found on food storage containers. The barrier fits around the stoma and
sticks to your skin.
In a one-piece system, the pouch and barrier
are a single unit.