End of Life Caregiving
Emotional and Spiritual Comfort
In addition to physical pain, your loved one may experience emotional and
spiritual pain. They are experiencing many losses including the loss of control
over their own life. It is important for you to continue to explain what is
happening with your loved ones care, condition, and any other changes.
- Try and take time each day to talk to them about their feelings and to
share your feelings with them.
- Be patient with yourself and the care recipient. Listen to what they want
to share with you.
- Whatever feelings they have-let them know that they have a right to feel
that way; do not try and talk them out of their feelings.
- Your loved one may wish to discuss their fears, concerns or distress with
someone else, encourage them to do so. Offer to contact a friend, counselor or
chaplain, and give your loved one privacy.
- Ask for help. The best way you can support someone else is to take care of
Care for Yourself
Caregiving can be a rewarding and exhausting experience. It is important
that you manage the stress of being a caregiver by attending to your needs.
- Make a list of specific things that you need help with: grocery shopping,
laundry, errands, lawn care, housecleaning, or spending time with the care
recipient so you can do something else. When someone says "let me know if
there is anything I can do" point to the list!
- Take a break from caregiving-even if it is 15 minutes a day that you do
something just for you.
- Exercise and eat healthy.
- Subscribe to caregiving newsletters or Listservs for advice/support when
caregiving for a loved one.
- Attend a support group for caregivers.
- Pay attention to your needs and seek professional help to address grief,
anxiety, or other issues. Many caregivers have times when they are lonely,
anxious, guilty, angry, scared, frustrated, confused, lost and tired. If you
feel like these feelings are overwhelming you, call your doctor, hospice or
another community resource (see below) for help.
Caregiving often comes with new responsibilities and unfamiliar tasks, yet
most caregivers never receive training. The following information may help you
with a current situation or prepare you for what may happen.
Has the person you are caring for told you their wishes for end-of-life care?
In the event that you are asked to make or help make decisions it is important
for you to talk about issues, including thoughts about potential
life-prolonging treatments. Advance directives are tools that enable people to
write down their preferences on a legal form and appoint someone to speak for
them if they are no longer able. A living will, health care power of attorney,
financial power of attorney, and plan for after care (funeral arrangements) can
help ensure peace of mind for the ill person as well as you as the