Alzheimer's Disease and Clinical Trials
What Is It Like to Participate in a Clinical Trial? continued...
This may help ease your concerns:
- The personal information gathered about you during the clinical trial will remain confidential and will not be reported with your name attached.
- If at any time throughout the trial you and your physician feel it is in your best interest to exit the trial and use other known treatments, you will be free to do so. This will not in any way affect your future treatment.
- Clinical trial participants typically receive their care in the same places that the standard treatments are given -- in clinics or doctor's offices.
- Clinical trial participants are watched closely, and information about you will be carefully recorded and reviewed.
Important Questions to Ask About a Clinical Trial
If you are thinking about taking part in a clinical trial, find out as much as possible about the study before you decide to participate. Here are some important questions to ask:
- What is the purpose of the clinical trial?
- What kinds of tests and treatments does the clinical trial involve, and how are these tests given?
- What is likely to happen in my case with, or without, this new research treatment? (Are there standard treatment options for my case, and how does the study compare with them?)
- How could the clinical trial affect my daily life?
- What side effects can I expect from the clinical trial? Remember, there can also be side effects from standard treatments and unpleasant effects from the disease itself.
- How long will the clinical trial last?
- Will the clinical trial require extra time on my part?
- Will I have to be hospitalized? If so, how often and for how long?
- If I agree to withdraw from the clinical trial, will my care be affected? Will I need to change physicians?