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    Scleroderma

    Important
    It is possible that the main title of the report Scleroderma is not the name you expected. Please check the synonyms listing to find the alternate name(s) and disorder subdivision(s) covered by this report.

    Synonyms

    • Progressive Systemic Sclerosis
    • PSS
    • Sclerosis, Familial Progressive Systemic
    • Systemic Sclerosis

    Disorder Subdivisions

    General Discussion

    Scleroderma is a rare autoimmune connective tissue disorder characterized by abnormal thickening of the skin. Connective tissue is composed of collagen, which supports and binds other body tissues. There are several types of scleroderma. Some types affect certain, specific parts of the body, while other types can affect the whole body and internal organs (systemic). Scleroderma is also known as progressive systemic sclerosis. The exact cause of scleroderma is unknown.

    Resources

    Scleroderma Research Foundation
    220 Montgomery Street
    Suite 1411
    San Francisco, CA 94104
    USA
    Tel: (415)834-9444
    Fax: (415)834-9177
    Tel: (800)441-2873
    Email: srfcure@sclerodermaresearch.org
    Internet: http://www.srfcure.org/home

    Scleroderma Foundation
    300 Rosewood Drive, Suite 105
    Danvers, MA 01923
    USA
    Tel: (978)463-5843
    Fax: (978)463-5809
    Tel: (800)722-4673
    Email: sfinfo@scleroderma.org
    Internet: http://www.scleroderma.org

    American Autoimmune Related Diseases Association, Inc.
    22100 Gratiot Ave.
    Eastpointe, MI 48021
    Tel: (586)776-3900
    Fax: (586)776-3903
    Tel: (800)598-4668
    Email: aarda@aarda.org
    Internet: http://www.aarda.org/

    NIH/National Institute of Arthritis and Musculoskeletal and Skin Diseases
    Information Clearinghouse
    One AMS Circle
    Bethesda, MD 20892-3675
    USA
    Tel: (301)495-4484
    Fax: (301)718-6366
    Tel: (877)226-4267
    TDD: (301)565-2966
    Email: NIAMSinfo@mail.nih.gov
    Internet: http://www.niams.nih.gov/

    Juvenile Scleroderma Network, Inc.
    1204 W. 13th Street
    San Pedro, CA 90731
    USA
    Tel: (310)519-9511
    Fax: (310)519-9511
    Tel: (866)338-5892
    Email: jsdinfo@jsdn.org
    Internet: http://www.jsdn.org

    National Registry for Childhood Onset Scleroderma
    University of Pittsburgh
    Arthritis Institute
    726 South BST
    3500 Terrace Street
    Pittsburgh, PA 15261
    USA
    Tel: (412)383-8674
    Fax: (412)648-9643
    Tel: (800)603-8960
    Email: jablonj@msx.dept-med.pitt.edu
    Internet: http://www.scleroderma.org/medical/juvenile_registry.shtm

    Genetic and Rare Diseases (GARD) Information Center
    PO Box 8126
    Gaithersburg, MD 20898-8126
    Tel: (301)251-4925
    Fax: (301)251-4911
    Tel: (888)205-2311
    TDD: (888)205-3223
    Internet: http://rarediseases.info.nih.gov/GARD/

    Lupus Society of Alberta
    Suite 200, 1301 - 8 St. SW
    Calgary Alberta, T2R 1B7
    Canada
    Tel: 4032287956
    Fax: 4032287853
    Tel: 8882429182
    Email: lupuslsa@shaw.ca
    Internet: http://www.lupus.ab.ca

    Madisons Foundation
    PO Box 241956
    Los Angeles, CA 90024
    Tel: (310)264-0826
    Fax: (310)264-4766
    Email: getinfo@madisonsfoundation.org
    Internet: http://www.madisonsfoundation.org

    Autoimmune Information Network, Inc.
    PO Box 4121
    Brick, NJ 08723
    Fax: (732)543-7285
    Email: autoimmunehelp@aol.com

    International Scleroderma Network
    7455 France Ave So #266
    Edina, MN 55435-4702
    Tel: (952)583-5735
    Tel: (800)564-7099
    Email: isn@sclero.org
    Internet: http://www.sclero.org

    European Society for Immunodeficiencies
    1-3 rue de Chantepoulet
    Geneva, CH 1211
    Switzerland
    Tel: 410229080484
    Fax: 41229069140
    Email: esid@kenes.com
    Internet: http://www.esid.org

    AutoImmunity Community
    Email: moderator@autoimmunitycommunity.org
    Internet: http://www.autoimmunitycommunity.org

    Global Fibrosis Foundation
    5036 Dr. Phillips Boulevard
    Suite 244
    Orlando, FL 32819
    Tel: (407)909-0753
    Fax: (407)909-0153
    Tel: (800)872-6874
    Email: globalfibrosis@gmail.com
    Internet: http://www.globalfibrosis.com

    For a Complete Report:

    This is an abstract of a report from the National Organization for Rare Disorders (NORD). A copy of the complete report can be downloaded free from the NORD website for registered users. The complete report contains additional information including symptoms, causes, affected population, related disorders, standard and investigational therapies (if available), and references from medical literature. For a full-text version of this topic, go to www.rarediseases.org and click on Rare Disease Database under "Rare Disease Information".

    The information provided in this report is not intended for diagnostic purposes. It is provided for informational purposes only. NORD recommends that affected individuals seek the advice or counsel of their own personal physicians.

    It is possible that the title of this topic is not the name you selected. Please check the Synonyms listing to find the alternate name(s) and Disorder Subdivision(s) covered by this report

    This disease entry is based upon medical information available through the date at the end of the topic. Since NORD's resources are limited, it is not possible to keep every entry in the Rare Disease Database completely current and accurate. Please check with the agencies listed in the Resources section for the most current information about this disorder.

    For additional information and assistance about rare disorders, please contact the National Organization for Rare Disorders at P.O. Box 1968, Danbury, CT 06813-1968; phone (203) 744-0100; web site www.rarediseases.org or email orphan@rarediseases.org

    Last Updated: 12/14/2009
    Copyright 1986, 1987, 1988, 1990, 1992, 1993, 1996, 1997, 1998, 2000, 2002, 2003, 2004, 2006, 2007 National Organization for Rare Disorders, Inc.

    WebMD Medical Reference from the National Organization for Rare Disorders

    Last Updated: May 28, 2015
    This information is not intended to replace the advice of a doctor. Healthwise disclaims any liability for the decisions you make based on this information.

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