National. 23 chapters, 170 affiliated groups. Founded 1998. Dedicated to providing emotional support to people with scleroderma, their families and caregivers. Sponsors scleroderma education and public awareness events and funds research. Referrals to local support groups and physicians. Advocacy program and annual conference. Online message board. Dues $25/yr.
300 Rosewood Dr., Suite 105
Danvers, MA 01923
Voice: 1-800-722-4673 or 978-463-5843 (Mon.-Fri., 8:30am-5pm EST)
National. Founded 1987. Mission is to find a cure for scleroderma by funding and facilitating the most promising research. Provides scleroderma information online and via 'Insights' scleroderma newsletter.
Scleroderma Research Foundation
220 Montgomery St., Suite 1411
San Francisco, CA 94104
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