This information is provided as a resource and does not constitute an endorsement for any group. It is the responsibility of the reader to decide whether a group is appropriate for his/her needs. For evidence-based information on diseases, conditions, symptoms, treatment and wellness issues, continue searching this site.
National. 23 chapters, 170 affiliated groups. Founded 1998. Dedicated to providing emotional support to people with scleroderma, their families and caregivers. Sponsors scleroderma education and public awareness events and funds research. Referrals to local support groups and physicians. Advocacy program and annual conference. Online message board. Dues $25/yr.
300 Rosewood Dr., Suite 105
Danvers, MA 01923
Voice: 1-800-722-4673 or 978-463-5843
International. Founded 1998. Provides support for individuals with Scleroderma. Click on 'SUPPORT' for a wide range of support and lists of national, international and online support groups. Under 'SUPPORT' find 'SCLERO FORUMS' for online support, chat, blogs, videos and more.
7455 France Ave S #266
Edina, MN 55435
Voice: 1-800-564-7099 or 952-831-3091