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    Sjögren Syndrome

    Important
    It is possible that the main title of the report Sjögren Syndrome is not the name you expected. Please check the synonyms listing to find the alternate name(s) and disorder subdivision(s) covered by this report.

    Synonyms

    • Dacryosialoadenopathia atrophicans
    • Gougerot-Houwer-Sjogren
    • Gougerot-Sjogren
    • Keratoconjunctivitis Sicca
    • Keratoconjunctivitis sicca-xerostomia
    • Secreto-inhibitor-xerodermostenosis
    • Sicca Syndrome

    Disorder Subdivisions

    • None

    General Discussion

    Sjögren syndrome is an autoimmune disorder characterized by degeneration of the mucus-secreting glands, particularly the tear ducts of the eyes (lacrimal) and saliva glands of the mouth. Autoimmune disorders are caused when the body's natural defenses (antibodies, lymphocytes, etc.) against invading organisms suddenly begin to attack healthy tissue. Sjögren syndrome is also associated with inflammatory disorders such as arthritis or lupus.

    Resources

    American Autoimmune Related Diseases Association, Inc.
    22100 Gratiot Ave.
    Eastpointe, MI 48021
    Tel: (586)776-3900
    Fax: (586)776-3903
    Tel: (800)598-4668
    Email: aarda@aarda.org
    Internet: http://www.aarda.org/

    Sjogren's Syndrome Foundation, Inc.
    6707 Democracy Blvd
    Suite 325
    Bethesda, MD 20817
    Tel: (301)530-4420
    Fax: (301)530-4415
    Tel: (800)475-6473
    Email: tms@sjogrens.org
    Internet: http://www.sjogrens.org

    Arthritis Foundation
    1330 West Peachtree Street, Suite 100
    Atlanta, GA 30309
    USA
    Tel: (404)872-7100
    Tel: (800)283-7800
    Email: arthritisfoundation@arthritis.org
    Internet: http://www.arthritis.org

    NIH/National Institute of Arthritis and Musculoskeletal and Skin Diseases
    Information Clearinghouse
    One AMS Circle
    Bethesda, MD 20892-3675
    USA
    Tel: (301)495-4484
    Fax: (301)718-6366
    Tel: (877)226-4267
    TDD: (301)565-2966
    Email: NIAMSinfo@mail.nih.gov
    Internet: http://www.niams.nih.gov/

    NIH/National Eye Institute
    31 Center Dr
    MSC 2510
    Bethesda, MD 20892-2510
    United States
    Tel: (301)496-5248
    Fax: (301)402-1065
    Email: 2020@nei.nih.gov
    Internet: http://www.nei.nih.gov/

    NIH/National Institute of Dental and Craniofacial Research
    Building 31, Room 2C39
    31 Center Drive, MSC 2290
    Bethesda, MD 20892
    USA
    Tel: (301)496-4261
    Fax: (301)480-4098
    Tel: (866)232-4528
    Email: nidcrinfo@mail.nih.gov
    Internet: http://www.nidcr.nih.gov/

    National Sjogren's Syndrome
    Box 147
    Svedala, 233 23
    Sweden
    Tel: 046255925
    Email: harry.paulnitz@telia.com
    Internet: http://www.sjogrensyndrom.se

    Sjögren's Syndrome Association
    3155 Rue Hochelaga, Suite 001
    Montreal
    Quebec, H1W 1G4
    Canada
    Tel: 5149343666
    Fax: 5149341241
    Tel: 8779343666
    Email: sjogren.montreal@qc.aira.com
    Internet: http://www.sjogrens.ca/

    International Painful Bladder Foundation
    Burgemeester Le Fèvre de Montignylaan 73
    Rotterdam, 3055 NA
    The Netherlands
    Tel: 31104613330
    Fax: 31104613330
    Email: info@painful-bladder.org
    Internet: http://www.painful-bladder.org

    CNS Vasculitis Foundation
    9930 Morningfield
    San Antonio, TX 78250-3743
    USA
    Tel: (210)523-8234
    Email: info@cnsvf.org
    Internet: http://www.cnsvf.org

    Genetic and Rare Diseases (GARD) Information Center
    PO Box 8126
    Gaithersburg, MD 20898-8126
    Tel: (301)251-4925
    Fax: (301)251-4911
    Tel: (888)205-2311
    TDD: (888)205-3223
    Internet: http://rarediseases.info.nih.gov/GARD/

    Lupus Society of Alberta
    Suite 200, 1301 - 8 St. SW
    Calgary Alberta, T2R 1B7
    Canada
    Tel: 4032287956
    Fax: 4032287853
    Tel: 8882429182
    Email: lupuslsa@shaw.ca
    Internet: http://www.lupus.ab.ca

    Center for Peripheral Neuropathy
    University of Chicago
    5841 South Maryland Ave, MC 2030
    Chicago, IL 60637
    Tel: (773)702-5659
    Fax: (773)702-5577
    Internet: http://peripheralneuropathycenter.uchicago.edu/

    Madisons Foundation
    PO Box 241956
    Los Angeles, CA 90024
    Tel: (310)264-0826
    Fax: (310)264-4766
    Email: getinfo@madisonsfoundation.org
    Internet: http://www.madisonsfoundation.org

    Autoimmune Information Network, Inc.
    PO Box 4121
    Brick, NJ 08723
    Fax: (732)543-7285
    Email: autoimmunehelp@aol.com

    International Scleroderma Network
    7455 France Ave So #266
    Edina, MN 55435-4702
    Tel: (952)583-5735
    Tel: (800)564-7099
    Email: isn@sclero.org
    Internet: http://www.sclero.org

    European Society for Immunodeficiencies
    1-3 rue de Chantepoulet
    Geneva, CH 1211
    Switzerland
    Tel: 410229080484
    Fax: 41229069140
    Email: esid@kenes.com
    Internet: http://www.esid.org

    AutoImmunity Community
    Email: moderator@autoimmunitycommunity.org
    Internet: http://www.autoimmunitycommunity.org

    Cogan's Contact Network
    PO Box 145
    Freehold, NJ 07728-0145
    USA
    Tel: (732)409-1031
    Internet: http://www.coganssyndrome.info/

    For a Complete Report:

    This is an abstract of a report from the National Organization for Rare Disorders (NORD). A copy of the complete report can be downloaded free from the NORD website for registered users. The complete report contains additional information including symptoms, causes, affected population, related disorders, standard and investigational therapies (if available), and references from medical literature. For a full-text version of this topic, go to www.rarediseases.org and click on Rare Disease Database under "Rare Disease Information".

    The information provided in this report is not intended for diagnostic purposes. It is provided for informational purposes only. NORD recommends that affected individuals seek the advice or counsel of their own personal physicians.

    It is possible that the title of this topic is not the name you selected. Please check the Synonyms listing to find the alternate name(s) and Disorder Subdivision(s) covered by this report

    This disease entry is based upon medical information available through the date at the end of the topic. Since NORD's resources are limited, it is not possible to keep every entry in the Rare Disease Database completely current and accurate. Please check with the agencies listed in the Resources section for the most current information about this disorder.

    For additional information and assistance about rare disorders, please contact the National Organization for Rare Disorders at P.O. Box 1968, Danbury, CT 06813-1968; phone (203) 744-0100; web site www.rarediseases.org or email orphan@rarediseases.org

    Last Updated: 8/7/2007
    Copyright 1992, 1993, 1994, 1997, 1998, 2000, 2002, 2007 National Organization for Rare Disorders, Inc.

    WebMD Medical Reference from the National Organization for Rare Disorders

    Last Updated: May 28, 2015
    This information is not intended to replace the advice of a doctor. Healthwise disclaims any liability for the decisions you make based on this information.

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