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National. 78 groups. Founded 1983. Information and education for Sjogren's syndrome patients, families, health professionals and the public. Opportunities for patients to share ways of coping. Stimulates research for treatments and cures. Newsletter 'Moisture Seekers,' audio tapes, annual symposium and Sjogren's handbook.
Sjogren's Syndrome Foundation
6707 Democracy Blvd., Suite 325
Bethesda, MD 20817
Voice: 1-800-475-6473 or 301-530-4420 (Mon.-Fri., 9am-5pm)
Online. 826 members. Founded 1999. Caring internet community built for people who have Sjogren's Syndrome (a chronic, slowly progressive autoimmune disease that affects the exocrine glands) to meet and share experiences, personal knowledge and to disseminate information to improve quality of life. Discussion forums, instant messaging, live chats and e-mail lists.