If you're chronically or seriously ill, tending to self-care needs is never easy.
Putting on that hospital gown and wristband and other seemingly easy tasks can become daunting. Getting a second opinion, figuring out what your insurance covers, and researching your treatment options can be a struggle when attempted from a hospital bed.
By Helen Kirwan-Taylor
Many years ago I had a falling-out with a girlfriend that proved so painful, I can hardly talk about it today. My friend (let's call her Mary) was a colorful television personality and had the world at her feet. She was engaged to a handsome European, and her face was plastered across the newspapers. I was working for 60 Minutes at the time, and we often met for lunch. Then one day her show was canceled and she asked me - casually, as though it didn't really matter...
One reason, say experts, is that patients are frequently unprepared for the change in routine and the lack of resources available in their new environment.
"Once you're admitted, a lot of the options you relied on to help you make health care decisions -- like the Internet, or even your personal computer files or your address book -- are suddenly not there. And that can leave you more than a bit disoriented," says Sandy Burke, the director of patient representatives at NYU Medical Center in New York.
Complicating matters further, she says, is the state of high anxiety that usually accompanies most hospital stays.
"The emotional state is so high on the part of the patient and oftentimes the family that even if the procedure or treatment is elective, most people don't even think beyond getting through the operation," says Burke.
Although no one knows when an acute problem will strike, or when a chronic disease or condition will suddenly worsen, experts say that taking a few simple steps to prepare and organize at least some of your health care needs can help keep you in the driver's seat, if and when the time for hospitalization arrives.
What follows are four steps that experts tell WebMD will make a difference.
Step 1: Get to Know Yourself
Whether you have a chronic condition -- or you're simply getting on in years -- experts say one of the best things you can do for yourself is become familiar with what your future health care needs may be and how your personal needs may change as a result. The best source for this information: your doctor.
"About 10 years ago, my mother sat down with her doctor and had a meaningful conversation about not only her health, but the whole idea of growing old -- what to expect and how to prepare for that," says Lyla Correoso, MD, medical director of the Visiting Nurse Service of New York's Bronx Hospice Program.