Questions & Answers: Advance Directives and End of Life Decisions
Is there federal law about advance directives?
Yes, the Patient Self-Determination Act (PSDA) is a federal law regarding
advance directives. It requires medical facilities that receive Medicaid and
Medicare funds to have procedures for handling patients' advance directives,
and to tell patients upon admission about their rights under state law to use
advance directives. The PSDA does not set standards for what advance directives
must say; it does not require facilities to provide advance directive forms;
and it does not require people to have advance directives. Rather, the PSDA's
purpose is to make people aware of their rights.
The Joint Commission on Accreditation of Healthcare Organizations (JCAHO)
evaluates and accredits nearly 19,000 healthcare organizations and programs in
the United States. An independent, not-for-profit organization, JCAHO has
developed standards for the documentation of patient wishes regarding advance
directives, which apply to the vast majority of healthcare institutions.
Spiritual and religious well-being may help improve quality of life.
It is not known for sure how spirituality and religion are related to health. Some studies show that spiritual or religious beliefs and practices create a positive mental attitude that may help a patient feel better and improve the well-being of family caregivers. Spiritual and religious well-being may help improve health and quality of life in the following ways:
Decrease anxiety, depression, anger, and discomfort.
Will a pregnant woman's advance directives be honored?
Under some state laws, advance directive instructions to refuse treatment
may not be honored while a woman is pregnant. If you wish your advance
directives to apply during pregnancy, you will improve your chances of having
this wish honored, although not ensure it, by stating the wish clearly.
Can I state my wishes about organ donation, cremation or burial in my advance directives?
Several states permit you to indicate your wishes regarding organ donation.
In those states that do not specifically address the issue of organ donation
you may state your wishes in your advance directive. However, you should
consider expressing your wishes through a form designed for that purpose. You
also should be sure to make your family aware of your wishes. Since your
advance directive and the authority of your agent technically ceases upon your
death, you should tell your wishes about cremation or burial to your family or
the executor of your estate.
WebMD Medical Reference from the National Hospice and Palliative Care Organization