Disabilities (General) / Spinal Cord Injury
(A Program of the United Spinal Association) National. 22 chapters and 40 support groups. Founded 1948. Provides information and referrals on many topics to persons with spinal cord injuries and diseases, their families and interested professionals. Group development guidelines, bi-monthly newsletter, support groups and peer counseling. Online listing of local chapters.
National Spinal Cord Injury Association
75-20 Astoria Blvd
East Elmhurst, NY 11370
Voice: 1-800-962-9629 (Mon.-Fri., 8:30am-5pm EST)
National network. Founded 1979. Provides peer support through networking for farmers and ranchers with disabilities. Connects recently injured individuals with persons with similar disability. Support through talking, correspondence and visitation.
Breaking New Ground
225 S. University St.
W. Lafayette, IN 47907-2093
Voice: 765-494-5088 (Voice/TTY) or 1-800-825-4264
TDD: 765-494-5088 (Voice/TTY)
National. 340 affiliated groups. Founded 1990. Organization dedicated to the life-long concerns of brothers and sisters of people with special health, developmental and mental health concerns. Provides workshops on sibling issues, hosts listservs and provides training on how to implement Sibshops (lively workshops for school-age siblings).
Sibling Support Project
c/o Donald Meyer
6512 23rd Ave. NW, Suite 213
Seattle, WA 98117
International. 28 chapters. Founded 1994. Provides education regarding the impact of chronic illness and/or disability on a family. Information, referrals, phone support, e-mail correspondence and 'how-to' guides on developing a local group.
18 Dunster Rd.
Great Neck, NY 11021
National. 21 chapters. Founded 1946. Aim is to provide support and improve the quality of life for all Americans with spinal cord injuries and disorders.
United Spinal Association
75-20 Astoria Blvd.
Jackson Heights, NY 11370-1177
Voice: 718-803-3782 ext. 7203
National. 34 chapters and 58 field service offices. Aim is to ensure that spinal cord injured or diseased veterans achieve the highest quality of life possible. Membership is available solely to individuals who are American citizens with spinal cord dysfunction as a result of trauma or disease. Must have served on active duty and had an other than dishonorable discharge. Support groups, publications, VA benefits counseling, magazine, information and referrals.
Paralyzed Veterans of America
801 18th St. NW
Washington, DC 20006
Online. Provides a forum for quadriplegics (tetraplegics) to support and communicate with others who share the same condition. Not strictly a SCI (spinal cord injury) forum. Forum is for anyone who suffers a partial or full loss of function of all four extremities of the body.
Website: http://www.makoa.org/quadlist.htm or http://www.facebook.com/quadlist
Online. 1500+ members. Founded 1998. Listserv for and about adult brothers and sisters of people with special health, developmental and emotional needs. Opportunity for adult brothers and sisters to share information and discuss issues of common interest. Subscribers can connect with their peers, seek information about local services, create connections for their siblings and discuss the proper policies agencies should have toward brothers and sisters.
Online. Founded 2004. Provides mutual support for disabled LBGT people. Offers information, advice, online support for members. Combats the social isolation through Regard Chat for discussion and more social contacts. Provides advocacy and campaigns on issues affecting disabled LBGT people. Provides online newsletters, news and notices.
London, UK WC1N 3XX
Website: http://www.regard.org.uk or http://facebook.com/#!/group.php?gid=131451632773
The above information was "verified" as correct on the date at the end of each entry. Since American Self-Help Group Clearinghouse's database is extensive but staffing is limited and information for these organizations can change, it is not possible to keep every entry in American Self-Help Group Clearinghouse database completely current and accurate. Please check with the organizations listed for the most current information.
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