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    Hydrocephalus

    Important
    It is possible that the main title of the report Hydrocephalus is not the name you expected. Please check the synonyms listing to find the alternate name(s) and disorder subdivision(s) covered by this report.

    Synonyms

    • Hydrocephaly
    • Water on the Brain

    Disorder Subdivisions

    • Communicating Hydrocephalus
    • Non-Communicating Hydrocephalus
    • Obstructive Hydrocephalus
    • Internal Hydrocephalus
    • Normal Pressure Hydrocephalus
    • Benign Hydrocephalus

    General Discussion

    Hydrocephalus is a condition in which abnormally widened (dilated) cerebral spaces in the brain (ventricles) inhibit the normal flow of cerebrospinal fluid (CSF). The cerebrospinal fluid accumulates in the skull and puts pressure on the brain tissue. An enlarged head in infants and increased cerebrospinal fluid pressure are frequent findings but are not necessary for the diagnosis of Hydrocephalus. There are several different forms of Hydrocephalus: communicating hydrocephalus, non-communicating hydrocephalus or obstructive hydrocephalus, internal hydrocephalus, normal pressure hydrocephalus, and benign hydrocephalus.

    Resources

    March of Dimes Birth Defects Foundation
    1275 Mamaroneck Avenue
    White Plains, NY 10605
    Tel: (914)997-4488
    Fax: (914)997-4763
    Tel: (888)663-4637
    Email: Askus@marchofdimes.com
    Internet: http://www.marchofdimes.com

    The Arc
    1825 K Street NW, Suite 1200
    Washington, DC 20006
    Tel: (202)534-3700
    Fax: (202)534-3731
    Tel: (800)433-5255
    TDD: (817)277-0553
    Email: info@thearc.org
    Internet: http://www.thearc.org

    National Hydrocephalus Foundation
    12413 Centralia Rd.
    Lakewood, CA 90715-1653
    USA
    Tel: (562)924-6666
    Fax: (562)924-6666
    Tel: (888)857-3434
    Email: nhf@earthlink.net
    Internet: http://www.nhfonline.org

    Hydrocephalus Association
    4340 East West Highway Ste 950
    Bethesda, MD 20814
    USA
    Tel: (301)202-3811
    Fax: (301)202-3813
    Tel: (888)598-3789
    Email: info@hydroassoc.org
    Internet: http://www.hydroassoc.org

    International Federation for Spina Bifida and Hydrocephalus
    Cellebroersstraat 16
    Brussels, B1000
    Belgium
    Tel: 32025020413
    Fax: 32025021129
    Email: info@ifglobal.org
    Internet: http://www.ifglobal.org

    NIH/National Institute of Neurological Disorders and Stroke
    P.O. Box 5801
    Bethesda, MD 20824
    Tel: (301)496-5751
    Fax: (301)402-2186
    Tel: (800)352-9424
    TDD: (301)468-5981
    Internet: http://www.ninds.nih.gov/

    Shine
    42 Park Road
    Peterborough, PE1 2UQ
    United Kingdom
    Tel: 01733555988
    Fax: 08454507755
    Email: info@shinecharity.org.uk
    Internet: http://www.shinecharity.org.uk/

    Hydrocephalus Support Group, Inc.
    1933 Mistflower Glen Ct.
    Chesterfield, MO 63005-4236
    USA
    Tel: (636)532-8228
    Fax: (314)251-5871
    Email: hydrob@earthlink.net

    Birth Defect Research for Children, Inc.
    976 Lake Baldwin Lane
    Orlando, FL 32814
    USA
    Tel: (407)895-0802
    Email: staff@birthdefects.org
    Internet: http://www.birthdefects.org

    Genetic and Rare Diseases (GARD) Information Center
    PO Box 8126
    Gaithersburg, MD 20898-8126
    Tel: (301)251-4925
    Fax: (301)251-4911
    Tel: (888)205-2311
    TDD: (888)205-3223
    Internet: http://rarediseases.info.nih.gov/GARD/

    Hydrocephalus Foundation, Inc.
    910 Rear Broadway
    Route 1
    Saugus, MA 01906
    Tel: (781)942-1161
    Fax: (781)231-5250
    Email: HyFII@netscape.net
    Internet: http://www.hydrocephalus.org

    Spina Bifida & Hydrocephalus Association of Ontario
    555 Richmond St W
    PO Box 103
    Ste 1006
    Toronto, Ontario, M5V 3B1
    Canada
    Tel: 4162141056
    Fax: 4162141446
    Tel: 8003871575
    Email: provinivial@sbhao.on.ca
    Internet: http://www.sbhao.on.ca

    Spina Bifida Hydrocephalus Queensland
    PO Box 8022
    Woolloongabba
    Queensland, 4102
    Australia
    Tel: (07) 3844 4600
    Fax: (07) 3844 4601
    Email: info@sbhqueensland.org.au
    Internet: http://www.spinabifida.org

    Dandy-Walker Alliance, Inc.
    10325 Kensington Pkwy
    Suite 384
    Kensington, MD 20895
    Tel: (877)326-3992
    Email: comments@dandy-walker.org
    Internet: http://www.dandy-walker.org

    International Hydranencephaly Support Group
    11634 203rd Street
    Maple Ridge BC, V2X 4T9
    Canada
    Tel: 6044598691
    Email: angelbearmom@shaw.ca
    Internet: http://www.hydranencephaly.com

    Chiari & Syringomyelia Foundation
    29 Crest Loop
    Melville, NY 11747
    Tel: (718)966-2593
    Internet: http://www.CSFinfo.org

    Fetal Hope Foundation
    9786 South Holland Street
    Littleton, CO 80127
    USA
    Tel: (303)932-0553
    Tel: (877)789-4673
    Email: info@fetalhope.org
    Internet: http://www.fetalhope.org

    For a Complete Report:

    This is an abstract of a report from the National Organization for Rare Disorders (NORD). A copy of the complete report can be downloaded free from the NORD website for registered users. The complete report contains additional information including symptoms, causes, affected population, related disorders, standard and investigational therapies (if available), and references from medical literature. For a full-text version of this topic, go to www.rarediseases.org and click on Rare Disease Database under "Rare Disease Information".

    The information provided in this report is not intended for diagnostic purposes. It is provided for informational purposes only. NORD recommends that affected individuals seek the advice or counsel of their own personal physicians.

    It is possible that the title of this topic is not the name you selected. Please check the Synonyms listing to find the alternate name(s) and Disorder Subdivision(s) covered by this report

    This disease entry is based upon medical information available through the date at the end of the topic. Since NORD's resources are limited, it is not possible to keep every entry in the Rare Disease Database completely current and accurate. Please check with the agencies listed in the Resources section for the most current information about this disorder.

    For additional information and assistance about rare disorders, please contact the National Organization for Rare Disorders at P.O. Box 1968, Danbury, CT 06813-1968; phone (203) 744-0100; web site www.rarediseases.org or email orphan@rarediseases.org

    Last Updated: 1/8/2007
    Copyright 1984, 1985, 1987, 1988, 1989, 1992, 1995, 1997, 1999, 2002, 2007 National Organization for Rare Disorders, Inc.

    WebMD Medical Reference from the National Organization for Rare Disorders

    Last Updated: May 28, 2015
    This information is not intended to replace the advice of a doctor. Healthwise disclaims any liability for the decisions you make based on this information.

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