This information is provided as a resource and does not constitute an endorsement for any group. It is the responsibility of the reader to decide whether a group is appropriate for his/her needs. For evidence-based information on diseases, conditions, symptoms, treatment and wellness issues, continue searching this site.
(BILINGUAL) National network. Founded 1984. Provides support, education and advocacy for people with hydrocephalus and their families. Provides funding for hydrocephalus research. Provides a wealth of resource materials on hydrocephalus for all age groups, quarterly newsletter, directory of neurosurgeons, bi-annual national conference and scholarships for young adults. Support and information available in English and Spanish.
4340 East West Highway, Ste 905
Bethesda, MD 20814
Voice: 1-888-598-3789 or 301-202-3811
International network. Founded 1979. Mission is to establish and facilitate a communication network among families or adult-to-adult, provide informational and educational assistance to individuals and families affected by hydrocephalus and increase public awareness. Promotes and supports research on the cause, prevention and treatment of hydrocephalus. Guidelines to help start support groups available. Help Sheets, brochures, physician referrals and quarterly newsletter. Bi-annual conference, family contact with others in your area or nearby.
National Hydrocephalus Foundation
12413 Centralia Rd.
Lakewood, CA 90715-1623
Voice: 1-888-857-3434 or 562-924-6666