Neurodegeneration w/ Brain Iron Accumulation
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International network. Founded 1996. Provides emotional support to families affected by neurodegeneration with brain iron accumulation, a grouo of rare progressive neurological disorders with high brain iron and a movement disorder, along with various other symptoms. Educates public on NBIA, supports and monitors research and awards research grants. Newsletter, literature, bi-annual conferences, online listserv, family networking program and advocacy efforts.
NBIA Disorders Association
2082 Monaco Ct.
El Cajon, CA 92109-4235