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Neurodegeneration w/ Brain Iron Accumulation

International network. Founded 1996. Provides emotional support to families affected by neurodegeneration with brain iron accumulation, a grouo of rare progressive neurological disorders with high brain iron and a movement disorder, along with various other symptoms. Educates public on NBIA, supports and monitors research and awards research grants. Newsletter, literature, bi-annual conferences, online listserv, family networking program and advocacy efforts.
Write:
NBIA Disorders Association
2082 Monaco Ct.
El Cajon, CA 92109-4235
Voice: 619-588-2315
Fax: 619-588-4093
Website: http://www.nbiadisorders.org
E-mail: info@nbiadisorders.org
Verified: 8/24/2011

The above information was "verified" as correct on the date at the end of each entry. Since American Self-Help Group Clearinghouse's database is extensive but staffing is limited and information for these organizations can change, it is not possible to keep every entry in American Self-Help Group Clearinghouse database completely current and accurate. Please check with the organizations listed for the most current information.

For additional information on self-help groups, please visit the American Self-Help Group Clearinghouse web site at http://www.mentalhelp.net/selfhelp

If you find information that is not current, please contact American Self-Help Group Clearinghouse at: admin@selfhelpgroups.org

WebMD Medical Reference from the American Self-Help Clearinghouse

Last Updated: May 16, 2012

This information is provided as a resource and does not constitute an endorsement for any group. It is the responsibility of the reader to decide whether a group is appropriate for his/her needs. For evidence-based information on diseases, conditions, symptoms, treatment and wellness issues, continue searching this site.This information is not intended to replace the advice of a doctor. Healthwise disclaims any liability for the decisions you make based on this information.