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    Post Polio Syndrome

    Important
    It is possible that the main title of the report Post Polio Syndrome is not the name you expected. Please check the synonyms listing to find the alternate name(s) and disorder subdivision(s) covered by this report.

    Synonyms

    • Polio, Late Effects
    • Post-Polio Muscular Atrophy
    • Post-Polio Sequelae
    • Postpoliomyelitis syndrome

    Disorder Subdivisions

    • None

    General Discussion

    Post-polio syndrome (PPS) is a syndrome that affects some people who have had polio (poliomyelitis) and occurs many years (typically from 10 to 40 years) after recovery from the initial infection. It is characterized by the development of progressive weakness in muscles that were affected by the original polio infection. In addition, those affected may experience extreme fatigue and joint pain. Skeletal deformities, such as scoliosis, may occur as a result of this syndrome. There is variation in the severity of symptoms. In severe cases, symptoms may mimic those of the rare disorder known as Lou Gehrig's disease (amyotrophic lateral sclerosis). The degree of muscle atrophy during the post-polio period appears to reflect the severity of the impact of the initial polio infection. People who were significantly affected by polio are more likely to experience severe symptoms from post-polio syndrome. The cause of this syndrome is not known. Although exact numbers are not available, it has been estimated that there are 300,000 polio survivors in the United States and that from one-fourth to one-half of them may ultimately develop some degree of post-polio syndrome.

    Resources

    Polio Society
    4200 Wisconsin Avenue
    Suite 106273
    Washington, DC 20016
    Tel: (301)897-8180
    Fax: (202)466-1911
    Email: poliosociety@yahoo.com
    Internet: http://www.poliosociety.org/

    Post-Polio Health International
    4207 Lindell Boulevard
    110
    St. Louis, MO 63108-2915
    USA
    Tel: (314)534-0475
    Fax: (314)534-5070
    TDD: (800)735-2966
    Email: info@post-polio.org
    Internet: http://www.post-polio.org

    British Polio Fellowship
    Eagle Office Centre
    The Runway
    South Ruislip
    Middlesex, HA4 6SE
    United Kingdom
    Fax: 02088420555
    Tel: 08000180586
    Email: info@britishpolio.org.uk
    Internet: http://www.britishpolio.org.uk

    Centers for Disease Control and Prevention
    1600 Clifton Road NE
    Atlanta, GA 30333
    Tel: (404)639-3534
    Tel: (800)232-4636
    TDD: (888)232-6348
    Email: cdcinfo@cdc.gov
    Internet: http://www.cdc.gov/

    New Horizons Un-Limited, Inc.
    811 East Wisconsin Ave
    P.O. Box 510034
    Milwaukee, WI 53203
    USA
    Tel: (414)299-0124
    Fax: (414)347-1977
    Email: horizons@new-horizons.org
    Internet: http://www.new-horizons.org

    Genetic and Rare Diseases (GARD) Information Center
    PO Box 8126
    Gaithersburg, MD 20898-8126
    Tel: (301)251-4925
    Fax: (301)251-4911
    Tel: (888)205-2311
    TDD: (888)205-3223
    Internet: http://rarediseases.info.nih.gov/GARD/

    For a Complete Report:

    This is an abstract of a report from the National Organization for Rare Disorders (NORD). A copy of the complete report can be downloaded free from the NORD website for registered users. The complete report contains additional information including symptoms, causes, affected population, related disorders, standard and investigational therapies (if available), and references from medical literature. For a full-text version of this topic, go to www.rarediseases.org and click on Rare Disease Database under "Rare Disease Information".

    The information provided in this report is not intended for diagnostic purposes. It is provided for informational purposes only. NORD recommends that affected individuals seek the advice or counsel of their own personal physicians.

    It is possible that the title of this topic is not the name you selected. Please check the Synonyms listing to find the alternate name(s) and Disorder Subdivision(s) covered by this report

    This disease entry is based upon medical information available through the date at the end of the topic. Since NORD's resources are limited, it is not possible to keep every entry in the Rare Disease Database completely current and accurate. Please check with the agencies listed in the Resources section for the most current information about this disorder.

    For additional information and assistance about rare disorders, please contact the National Organization for Rare Disorders at P.O. Box 1968, Danbury, CT 06813-1968; phone (203) 744-0100; web site www.rarediseases.org or email orphan@rarediseases.org

    Last Updated: 4/8/2009
    Copyright 1987, 1989, 1991, 1992, 1998, 2005, 2009 National Organization for Rare Disorders, Inc.

    WebMD Medical Reference from the National Organization for Rare Disorders

    Last Updated: May 28, 2015
    This information is not intended to replace the advice of a doctor. Healthwise disclaims any liability for the decisions you make based on this information.

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