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    Cervical Dystonia

    Important
    It is possible that the main title of the report Cervical Dystonia is not the name you expected. Please check the synonyms listing to find the alternate name(s) and disorder subdivision(s) covered by this report.

    Synonyms

    Disorder Subdivisions

    • None

    General Discussion

    Cervical dystonia, also known as spasmodic torticollis, is a rare neurological disorder characterized by involuntary muscle contractions in the neck that cause abnormal movements and postures of the neck and head. In some cases, these abnormal contractions may be sustained or continuous; in others, they may be present as spasms that can resemble tremor. The severity of cervical dystonia can vary, but the disorder can cause significant pain and discomfort as well as difficulty due to the abnormal postures. Cervical dystonia typically begins in middle age, and rarely begins in adolescence and young adulthood. The cause of cervical dystonia is unknown, although a genetic susceptibility is thought to underlie some cases. If cervical dystonia begins in infancy or early childhood, secondary causes should be investigated.

    Cervical dystonia is the most common form of focal dystonia that presents in an office setting. Dystonia is generally characterized by involuntary muscle contractions that force the body into abnormal, sometimes painful, movements and positions (postures). Cervical dystonia is a form of dystonia that involves the neck area. Symptoms may vary among affected individuals, including the age at onset, intensity, presence of pain, and degree of disability.

    Resources

    WE MOVE (Worldwide Education and Awareness for Movement Disorders)
    5731 Mosholu Avenue
    Bronx, NY 10471
    USA
    Tel: (347)843-6132
    Fax: (718)601-5112
    Email: wemove@wemove.org
    Internet: http://www.wemove.org

    Dystonia Medical Research Foundation
    1 East Wacker Drive, Suite 2810 East Wacker Drive
    Suite 2810
    Chicago, IL 60601-1905
    United States
    Tel: (312)755-0198
    Fax: (312)803-0138
    Tel: (800)377-3978
    Email: dystonia@dystonia-foundation.org
    Internet: http://www.dystonia-foundation.org

    National Spasmodic Torticollis Association
    9920 Talbert Avenue
    Fountain Valley, CA 92708
    Tel: (714)378-9837
    Fax: (714)378-9830
    Tel: (800)487-8385
    Email: NSTAmail@aol.com
    Internet: http://www.torticollis.org

    NIH/National Institute of Neurological Disorders and Stroke
    P.O. Box 5801
    Bethesda, MD 20824
    Tel: (301)496-5751
    Fax: (301)402-2186
    Tel: (800)352-9424
    TDD: (301)468-5981
    Internet: http://www.ninds.nih.gov/

    Dystonia Society
    89 Albert Embankment, 2nd Floor
    Vauxhall
    London, SE1 7TP
    United Kingdom
    Tel: 08454586211
    Fax: 08454586311
    Tel: 08454586322
    Email: angie@dystonia.org.uk
    Internet: http://www.dystonia.org.uk

    Dystonia Europe
    Square de Meeus 37 - 4th Floor
    Brussels, 1000
    Belgium
    Tel: 447736625450
    Email: sec@dystonia-europe.org
    Internet: http://www.dystonia-europe.org

    Genetic and Rare Diseases (GARD) Information Center
    PO Box 8126
    Gaithersburg, MD 20898-8126
    Tel: (301)251-4925
    Fax: (301)251-4911
    Tel: (888)205-2311
    TDD: (888)205-3223
    Internet: http://rarediseases.info.nih.gov/GARD/

    Spasmodic Torticollis ST/Dystonia, Inc.
    PO Box 28
    Mukwonago, WI 53149
    Tel: (262)560-9534
    Fax: (262)560-9535
    Tel: (888)445-4588
    Email: info@spasmodictorticollis.org
    Internet: http://www.spasmodictorticollis.org

    American Dystonia Society
    17 Suffolk Lane
    Suite 1
    Princeton Junction, NJ 08550
    Tel: (310)237-5478
    Fax: (609)275-5663
    Email: info@dystonia.us
    Internet: http://www.dystonia.us

    For a Complete Report:

    This is an abstract of a report from the National Organization for Rare Disorders (NORD). A copy of the complete report can be downloaded free from the NORD website for registered users. The complete report contains additional information including symptoms, causes, affected population, related disorders, standard and investigational therapies (if available), and references from medical literature. For a full-text version of this topic, go to www.rarediseases.org and click on Rare Disease Database under "Rare Disease Information".

    The information provided in this report is not intended for diagnostic purposes. It is provided for informational purposes only. NORD recommends that affected individuals seek the advice or counsel of their own personal physicians.

    It is possible that the title of this topic is not the name you selected. Please check the Synonyms listing to find the alternate name(s) and Disorder Subdivision(s) covered by this report

    This disease entry is based upon medical information available through the date at the end of the topic. Since NORD's resources are limited, it is not possible to keep every entry in the Rare Disease Database completely current and accurate. Please check with the agencies listed in the Resources section for the most current information about this disorder.

    For additional information and assistance about rare disorders, please contact the National Organization for Rare Disorders at P.O. Box 1968, Danbury, CT 06813-1968; phone (203) 744-0100; web site www.rarediseases.org or email orphan@rarediseases.org

    Last Updated: 2/4/2013
    Copyright 1986, 1987, 1990, 1991, 1993, 1996, 1998, 1999, 2000, 2001, 2002, 2007, 2010, 2013 National Organization for Rare Disorders, Inc.

    WebMD Medical Reference from the National Organization for Rare Disorders

    Last Updated: May 28, 2015
    This information is not intended to replace the advice of a doctor. Healthwise disclaims any liability for the decisions you make based on this information.

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