Living With a Spinal Cord Injury - Concerns of the Caregiver
Your first experience as a
caregiver for a
spinal cord injury (SCI) usually comes during
rehabilitation (rehab). Although the
rehab team takes the lead at this point in your loved one's recovery, there are some things you can do to help.
- Visit and talk with your loved one often. Find activities you
can do together, such as playing cards or watching TV. Try to keep in touch
with your loved one's friends as much as possible. Encourage them to visit.
- Help your loved one practice and learn new skills.
- Find out what he or she can do independently or needs help
with. Avoid doing things for your loved one that he or she is able to do
without your help.
- Learn what you and your family can do after your loved one
returns home. This may include helping him or her with the wheelchair,
getting to and from the bathroom, and eating.
Before your loved one returns home, a
decision has to be made about who is to be the main caregiver. You or another
family member may feel that you should be the main caregiver. But there may be reasons why this could be hard, such as:
- Your own health, which may limit what you can do to help.
- Your job, which provides all the income for your family and leaves you with limited time.
- Your own doubts that you could handle taking care of someone who has an SCI.
Discuss with the rehab team what it means to be a
caregiver. They can help you see what the full impact of caring for someone
with an SCI will be. And if you cannot be a full-time caregiver, the rehab team
can help you find a nursing home, an assisted-living facility, or in-home help.
They can also give you training in helping your loved one, even if you aren't
the full-time caregiver. You may need to help him or her do exercises, move in
and out of the wheelchair, and get dressed, for example.
or not you are the main caregiver, you need to attend to your own
- Don't try to do everything yourself. Ask other family members
to help. And find out what other type of help may be available.
- Take care of yourself by eating well and getting enough
- Make sure you don't ignore your own health while you are
caring for your loved one. Keep up with your own doctor visits, and make sure
to take your medicines regularly, if needed.
- Find a support group to attend. Support groups may be able to
offer advice about insurance coverage too.
- Schedule time for yourself. Get out of the house to do things
you enjoy, run errands, or go shopping.