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    Thoracic Outlet Syndrome

    Important
    It is possible that the main title of the report Thoracic Outlet Syndrome is not the name you expected. Please check the synonyms listing to find the alternate name(s) and disorder subdivision(s) covered by this report.

    Synonyms

    • TOS

    Disorder Subdivisions

    • arterial thoracic outlet syndrome
    • Paget-Schroetter syndrome
    • neurogenic thoracic outlet syndrome
    • nonspecific thoracic outlet syndrome
    • vascular thoracic outlet syndrome
    • venous thoracic outlet syndrome
    • pectoralis minor syndrome

    General Discussion

    Thoracic outlet syndrome (TOS) is a condition presenting with arm complaints of pain, numbness, tingling and weakness. The cause is pressure in the neck against the nerves and blood vessels that go to the arm.

    There are three types of TOS depending on which structure is being compressed:
    1. Neurogenic TOS-nerve compression comprises 95% of all TOS patients

    2. Venous TOS-compression of the main vein comprises 4% of all TOS patients

    3. Arterial TOS-compression of the main artery comprises less than 1% of all TOS patients

    4. Vascular TOS is a term sometimes used but there is no such entity as vascular TOS. The term refers to TOS due either to compression of an artery or vein (arterial or venous TOS). The appropriate terms, arterial or venous, should be employed and the term vascular discarded.

    The three types of TOS are very different from each other. Each will be described separately.

    Resources

    American Chronic Pain Association
    P.O. Box 850
    Rocklin, CA 95677
    USA
    Tel: (916)632-0922
    Fax: (916)652-8190
    Tel: (800)533-3231
    Email: ACPA@theacpa.org
    Internet: http://www.theacpa.org

    NIH/National Institute of Neurological Disorders and Stroke
    P.O. Box 5801
    Bethesda, MD 20824
    Tel: (301)496-5751
    Fax: (301)402-2186
    Tel: (800)352-9424
    TDD: (301)468-5981
    Internet: http://www.ninds.nih.gov/

    United Brachial Plexus Network
    1610 Kent Street
    Kent, OH 44240
    Fax: (866)221-2821
    Tel: (866)877-7004
    Email: info@ubpn.org
    Internet: http://www.ubpn.org

    Genetic and Rare Diseases (GARD) Information Center
    PO Box 8126
    Gaithersburg, MD 20898-8126
    Tel: (301)251-4925
    Fax: (301)251-4911
    Tel: (888)205-2311
    TDD: (888)205-3223
    Internet: http://rarediseases.info.nih.gov/GARD/

    For a Complete Report:

    This is an abstract of a report from the National Organization for Rare Disorders (NORD). A copy of the complete report can be downloaded free from the NORD website for registered users. The complete report contains additional information including symptoms, causes, affected population, related disorders, standard and investigational therapies (if available), and references from medical literature. For a full-text version of this topic, go to www.rarediseases.org and click on Rare Disease Database under "Rare Disease Information".

    The information provided in this report is not intended for diagnostic purposes. It is provided for informational purposes only. NORD recommends that affected individuals seek the advice or counsel of their own personal physicians.

    It is possible that the title of this topic is not the name you selected. Please check the Synonyms listing to find the alternate name(s) and Disorder Subdivision(s) covered by this report

    This disease entry is based upon medical information available through the date at the end of the topic. Since NORD's resources are limited, it is not possible to keep every entry in the Rare Disease Database completely current and accurate. Please check with the agencies listed in the Resources section for the most current information about this disorder.

    For additional information and assistance about rare disorders, please contact the National Organization for Rare Disorders at P.O. Box 1968, Danbury, CT 06813-1968; phone (203) 744-0100; web site www.rarediseases.org or email orphan@rarediseases.org

    Last Updated: 3/19/2012
    Copyright 2009, 2012 National Organization for Rare Disorders, Inc.

    WebMD Medical Reference from the National Organization for Rare Disorders

    Last Updated: May 28, 2015
    This information is not intended to replace the advice of a doctor. Healthwise disclaims any liability for the decisions you make based on this information.

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