This information is provided as a resource and does not constitute an endorsement for any group. It is the responsibility of the reader to decide whether a group is appropriate for his/her needs. For evidence-based information on diseases, conditions, symptoms, treatment and wellness issues, continue searching this site.
Online. Support e-mail list offers information on chronic myelogenous leukemia, polycythemia vera, essential thrombocythemia, agnogenic myeloid metaplasia, myelodysplasia and myelofibrosis.
E-mail: To subscribe e-mail: firstname.lastname@example.org
Online network. 1800 members. Founded 1989. Support network enabling persons with myeloproliferative disease to share their experiences and problems. Publishes materials pertaining to MPD, newsletter, phone support, conferences, information and referrals. Online listserv to exchange e-mails about the disease.
115 E. 72nd St.
New York, NY 10021
International. Empowers and educates patients and families through online and local mutual support groups, their website, a newsletter and conferences. The three main myeloproliferative neoplasms are Polycythemia Vera (PV), Essential Thrombocythemis (ET) and Primary Myelofibrosis (PMF).
MPN Research Foundation
180 N. Michigan Ave, Ste 1870
Chicago, IL 60601