The family caregiver has many roles besides giving the patient hands-on care.
Most people think first of the physical care given by a family caregiver, but a caregiver fills many other roles during the patient's cancer experience. In addition to hands-on care, the caregiver may also do the following:
Caring for a patient with cancer affects the family caregiver's quality of life.
Family caregivers usually begin caregiving without training and are expected to meet many demands without much help. A caregiver often neglects his or her own quality of life by putting the patient's needs first. Today, many health care providers watch for signs of caregiver distress during the course of the patient's cancer treatment. When caregiver strain affects the quality of caregiving, the patient's well-being...
Manage the patient's medical care, insurance claims, and bill payments.
Be a companion to the patient.
Go with the patient to doctor appointments, run personal errands, cook, clean, and do other housekeeping chores.
Find doctors and specialists needed and get information that may be hard to find.
Help the patient connect with family, friends, neighbors, and community members.
A family caregiver faces the tough job of taking on new roles and challenges as the patient's needs change over time.
The caregiver takes on different roles so that the patient gets all the information, support, and treatment he or she needs.
Caregivers may take on the roles of decision maker, patient advocate, and communicator.
Doctors, caregivers, and patients are partners in making decisions. Making a decision involves getting the right information in a way that it can be understood. Cancer patients have many information needs. They want to know about staying healthy, tests and treatments, side effects and symptoms, and emotional issues.
In order to make treatment decisions, caregivers and patients often want more information and they may look for help and information from sources other than the doctor. It's common for patients and their families to do the following:
Use the Internet to search for more information on the patient's cancer and its treatment.
Information from outside sources is sometimes wrong or may be different from what the doctor said. It's important to get information that can be trusted and to talk to the doctor about it. Most libraries can help people find articles about cancer in medical journals and cancer information written for patients and the public. Good places to get information include government agencies, cancer centers, and cancer organizations.
The family caregiver knows and understands the needs of the patient. The caregiver becomes an advocate for the patient by giving this information to the health care team. Although a caregiver may not have a medical background, daily contact with the patient gives the caregiver important information that helps the health care team help the patient. Information about the patient's symptoms and problems can help the doctor make better treatment plans and improve the patient's chance of getting better.
As the patient's advocate, the family caregiver may do the following:
Talk with the health care team about the patient's needs and wishes for the patient.
Get information that may be hard to find.
Find doctors and specialists needed.
Watch the patient for changes and problems.
Help the patient follow treatments.
Tell the health care team about any new symptoms or side effects and ask for help to treat them.
Help the patient make healthy changes and follow healthy behaviors.
Pay the patient's bills and take care of insurance claims.