Cancer Health Center
Turcot Syndrome
Important
It is possible that the main title of the report Turcot Syndrome is not the name you expected. Please check the synonyms listing to find the alternate name(s) and disorder subdivision(s) covered by this report.
Synonyms
- Brain tumor-polyposis syndrome
- Glioma-polyposis syndrome
Disorder Subdivisions
- None
General Discussion
Turcot syndrome is a rare inherited disorder characterized by the association of benign growths (adenomatous polyps) in the mucous lining of the gastrointestinal tract with tumors of the central nervous system. Symptoms associated with polyp formation may include diarrhea, bleeding from the end portion of the large intestine (rectum), fatigue, abdominal pain, and weight loss. Affected individuals may also experience neurological symptoms, depending upon the type, size and location of the associated brain tumor. Some researchers believe that Turcot syndrome is a variant of familial adenomatous polyposis. Others believe that it is a separate disorder. The exact cause of Turcot syndrome is not known.
.
Resources
American Brain Tumor Association
2720 River Road
Suite 146
Des Plaines, IL 60018
USA
Tel: (847)827-9910
Fax: (847)827-9918
Tel: (800)886-2282
Email: info@abta.org
Internet: http://www.abta.org
March of Dimes Birth Defects Foundation
1275 Mamaroneck Avenue
White Plains, NY 10605
Tel: (914)428-7100
Fax: (914)997-4763
Tel: (888)663-4637
Email: Askus@marchofdimes.com
Internet: http://www.marchofdimes.com
National Brain Tumor Foundation
22 Battery Street
Suite 612
San Francisco, CA 94111-5520
USA
Tel: (415)834-9970
Fax: (415)834-9980
Tel: (800)934-2873
Email: nbtf@braintumor.org
Internet: http://www.braintumor.org
Familial GI Cancer Registry
Mt. Sinai Hospital
600 University Avenue
Suite 1157
ON, M5G 1X5
Canada
Tel: 4165868334
Fax: 4165868644
Email: tberk@mtsinai.on.ca
Internet: http://www.mtsinai.on.ca/familialgicancer
Brain Tumor Society
124 Watertown Street
Suite 3H
Watertown, MA 02472-2500
Tel: (617)924-9997
Fax: (617)924-9998
Tel: (800)770-8287
Email: info@tbts.org
Internet: http://www.tbts.org
Intestinal Multiple Polyposis and Colorectal Cancer Registry
P.O. Box 11
Conyngham, PA 18219
Tel: (717)788-3712
Fax: (717)788-4046
Email: user291524@aol.com
American Cancer Society, Inc.
1599 Clifton Road NE
Atlanta, GA 30329
USA
Tel: (404)320-3333
Tel: (800)227-2345
Internet: http://www.cancer.org
Familial Polyposis Registry
Department of Colorectal Surgery
Cleveland Clinic Foundation
9500 Euclid Avenue
Cleveland, OH 44195-5001
Tel: (216)444-6470
Hereditary Colorectal Cancer Registry
550 N. Broadway
Suite 108
Baltimore, MD 21205-2011
USA
Tel: (410)955-4041
Email: hccregistry@jhmi.edu
Internet: http://www.coloncancer.org
NIH/National Digestive Diseases Information Clearinghouse
2 Information Way
Bethesda, MD 20892-3570
Tel: (301)654-3810
Fax: (301)907-8906
Tel: (800)891-5389
Email: nddic@info.niddk.nih.gov
Internet: http://www.niddk.nih.gov
National Cancer Institute
6116 Executive Blvd, MSC 8322, Room 3036A
Bethesda, MD 20892-8322
USA
Tel: (301)435-3848
Tel: (800)422-6237
TDD: (800)332-8615
Internet: http://www.cancer.gov
Southeastern Hereditary Colorectal Cancer Registry
University Hospital
1350 Walton Way
Augusta, GA 30910-3599
USA
Tel: (706)774-8900
Fax: (706)774-8915
Email: cwheeler@uh.org
Brain Tumour Foundation of Canada
620 Colborne Street
Suite 301
London
Ontario, N6B 3R9
Canada
Tel: 5196427755
Fax: 5196427192
Tel: 8002655106
Email: btfc@btfc.org
Internet: http://www.braintumour.ca
Brain Tumour Foundation, United Kingdom
P.O. Box 123
Tewkesbury, GL20 7PT
United Kingdom
Tel: 01684 290439
Fax: 01684 290439
Email: btf.uk@virgin.net
Children's Brain Tumor Foundation
274 Madison Avenue
Suite 1301
New York, NY 10016
United States
Tel: (212)448-9494
Fax: (212)448-1022
Tel: (866)228-4673
Email: info@cbtf.org
Internet: http://www.cbtf.org
OncoLink: The University of Pennsylvania Cancer Center Resource
3400 Spruce Street
2 Donner
Philadelphia, PA 19104-4283
USA
Tel: (215)349-5445
Fax: (215)349-5445
Email: editors@oncolink.upenn.edu
Internet: http://www.oncolink.upenn.edu
Brain Tumor Foundation for Children, Inc.
1835 Savoy Drive
Suite 200
Atlanta, GA 30341
USA
Tel: (770)458-5554
Fax: (770)458-5467
Email: btfc@bellsouth.net
Internet: http://www.braintumorkids.org
Strang-Cornell Hereditary Colon Cancer Program
428 East 72nd Street
New York, NY 10021
USA
Tel: (212)794-4900
Fax: (212)794-4958
Email: mbertagnolli@partners.org
Internet: http://www.strang.org
Friends of Cancer Research
2231 Crystal Drive
Suite 200
Arlington, VA 22202
Tel: (703)302-1503
Fax: (703)302-1568
Email: info@focr.org
Internet: http://www.focr.org
Cancer.Net
American Society of Clinical Oncology
2318 Mill Road
Suite 800
Alexandria, VA 22314
Tel: (571)483-1780
Fax: (571)366-9537
Tel: (888)651-3038
Email: contactus@cancer.net
Internet: http://www.cancer.net/patient
For a Complete Report:
This is an abstract of a report from the National Organization for Rare Disorders, Inc. ® (NORD). A copy of the complete report can be obtained for a small fee by visiting the NORD website. The complete report contains additional information including symptoms, causes, affected population, related disorders, standard and investigational treatments (if available), and references from medical literature. For a full-text version of this topic, see http://www.rarediseases.org/search/rdblist.html
The information provided in this report is not intended for diagnostic purposes. It is provided for informational purposes only. NORD recommends that affected individuals seek the advice or counsel of their own personal physicians.
It is possible that the title of this topic is not the name you selected. Please check the Synonyms listing to find the alternate name(s) and Disorder Subdivision(s) covered by this report
This disease entry is based upon medical information available through the date at the end of the topic. Since NORD's resources are limited, it is not possible to keep every entry in the Rare Disease Database completely current and accurate. Please check with the agencies listed in the Resources section for the most current information about this disorder.
For additional information and assistance about rare disorders, please contact the National Organization for Rare Disorders at P.O. Box 1968, Danbury, CT 06813-1968; phone (203) 744-0100; web site www.rarediseases.org or email orphan@rarediseases.org
Last Updated: 4/28/2008
Copyright 2000, 2003 National Organization for Rare Disorders, Inc.
WebMD Medical Reference from the National Organization of Rare Disorders
Experts are making great strides in treating cancer. But many of these advances apply only after the cancer has been diagnosed. Now the disease is about to come under attack with a revolutionary tool called a nanoshell. Learn how scientists hope the new technology will detect and destroy cancer cells sooner.
