Wilms' Tumor


It is possible that the main title of the report Wilms' Tumor is not the name you expected. Please check the synonyms listing to find the alternate name(s) and disorder subdivision(s) covered by this report.


  • Embryoma Kidney
  • Embryonal Adenomyosarcoma Kidney
  • Embryonal Carcinosarcoma Kidney
  • Embryonal Mixed Tumor Kidney
  • Nephroblastoma

Disorder Subdivisions

  • None

General Discussion

Wilms' tumor is the most common form of kidney cancer in children, accounting for 6 to 8 percent of all childhood cancers. About 500 new cases are diagnosed in the USA per year. The exact cause is not known, although it is thought that in 10-15% of affected individuals, one or more mutated genes create a predisposition to Wilms' tumor.

Typically, this disease first appears when the affected child is about three years old. Wilms' tumor can often be treated successfully, depending on the stage of the tumor at detection and the age and general health of the child.


The Arc

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American Kidney Fund, Inc.

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Tel: (800)638-8299

Email: helpline@kidneyfund.org

Internet: http://www.kidneyfund.org

American Childhood Cancer Organization

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Tel: (800)366-2223

Email: staff@acco.org

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National Kidney Foundation

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Fax: (212)689-9261

Tel: (800)622-9010

Email: info@kidney.org

Internet: http://www.kidney.org

American Cancer Society, Inc.

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Tel: (800)227-2345

TDD: (866)228-4327

Internet: http://www.cancer.org

Childhood Cancer Canada Foundation

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Ontario, M4T 1L9


Tel: 4164896440

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Email: info@childhoodcancer.ca

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International WAGR Syndrome Association

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Rare Cancer Alliance

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Aniridia Network UK

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Fax: (301)251-4911

Tel: (888)205-2311

TDD: (888)205-3223

Internet: http://rarediseases.info.nih.gov/GARD/

Madisons Foundation

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Internet: http://www.madisonsfoundation.org

Friends of Cancer Research

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American Society of Clinical Oncology

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Lance Armstrong Foundation

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Tel: (877)236-8820

Email: media@livestrong.org

Internet: http://www.livestrong.org

For a Complete Report

This is an abstract of a report from the National Organization for Rare Disorders (NORD). A copy of the complete report can be downloaded free from the NORD website for registered users. The complete report contains additional information including symptoms, causes, affected population, related disorders, standard and investigational therapies (if available), and references from medical literature. For a full-text version of this topic, go to www.rarediseases.org and click on Rare Disease Database under "Rare Disease Information".

The information provided in this report is not intended for diagnostic purposes. It is provided for informational purposes only. NORD recommends that affected individuals seek the advice or counsel of their own personal physicians.

It is possible that the title of this topic is not the name you selected. Please check the Synonyms listing to find the alternate name(s) and Disorder Subdivision(s) covered by this report

This disease entry is based upon medical information available through the date at the end of the topic. Since NORD's resources are limited, it is not possible to keep every entry in the Rare Disease Database completely current and accurate. Please check with the agencies listed in the Resources section for the most current information about this disorder.

For additional information and assistance about rare disorders, please contact the National Organization for Rare Disorders at P.O. Box 1968, Danbury, CT 06813-1968; phone (203) 744-0100; web site www.rarediseases.org or email orphan@rarediseases.org

Last Updated: 4/25/2008

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