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CHARGE Syndrome

This information is provided as a resource and does not constitute an endorsement for any group. It is the responsibility of the reader to decide whether a group is appropriate for his/her needs. For evidence-based information on diseases, conditions, symptoms, treatment and wellness issues, continue searching this site.

CHARGE Syndrome Foundation, Inc.

International network. Founded 1993. Networking of families affected by CHARGE Syndrome (coloboma of the eye, heart malformations, atresia of the nasal passages, retardation of growth and/or development, genital hypoplasia and ear malformations). Publications include CHARGE syndrome brochure, New Parent packet (12+ pgs.), 'CHARGE Syndrome: A Management Manual for Parents' (270 pgs.), Professional packet (35+ pgs.) and conference papers. Membership $25 (families); $40 (professionals) includes quarterly newsletter and parent-to-parent support. Moderated online support activities. Conferences in odd years (e.g. 2005).
Write:
CHARGE Syndrome Foundation Inc.
141 Middle Neck Rd.
Sands Point, NY 11050
Voice: 1-800-442-7604 or 516-684-4720
Website: http://www.chargesyndrome.org
E-mail: info@chargesyndrome.org
Verified: 8/13/2013

WebMD Medical Reference from the American Self-Help Clearinghouse

Last Updated: September 04, 2014
This information is provided as a resource and does not constitute an endorsement for any group.  It is the responsibility of the reader to decide whether a group is appropriate for his/her needs.  For evidence-based information on diseases, conditions, symptoms, treatment and wellness issues, continue searching this site.This information is not intended to replace the advice of a doctor. Healthwise disclaims any liability for the decisions you make based on this information.   

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