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National. 80 affiliated groups. Founded 1955. Provides information and referrals to patients, families, caregivers and the general public. Accredits more than 115 care centers throughout the United States. Newsletter, literature, fundraising, provides grants to researchers and conferences.
Cystic Fibrosis Foundation
6931 Arlington Rd.
Bethesda, MD 20814
Voice: 1-800-344-4823 or 301-951-4422