Dystrophic Epidermolysis Bullosa
This information is provided as a resource and does not constitute an endorsement for any group. It is the responsibility of the reader to decide whether a group is appropriate for his/her needs. For evidence-based information on diseases, conditions, symptoms, treatment and wellness issues, continue searching this site.
(Dystrophic Epidermolysis Bullosa Research Association) National network. Founded 1980. Support and information for families affected by Epidermolysis Bullosa. Provides education for patients, families and professionals; emergency financial support, emergency wound care supplies; New Family Advocate program; newsletter, biennial national conference, information and referrals. Promotes research for a cure.
DEBRA of America
16 E. 41st., 3rd Floor
New York, NY 10017
Voice: 212-868-1573 or 1-866-332-7276
E-mail: firstname.lastname@example.org or email@example.com