Dystrophic Epidermolysis Bullosa
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(Dystrophic Epidermolysis Bullosa Research Association) National network. Founded 1980. Support and information for families affected by Epidermolysis Bullosa. Provides education for patients, families and professionals; emergency financial support, emergency wound care supplies; New Family Advocate program; newsletter, biennial national conference, information and referrals. Promotes research for a cure.
DEBRA of America
16 E. 41st., 3rd Floor
New York, NY 10017
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