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(BILINGUAL)_International network. Founded 1997. Provides mutual support and information for families affected by Kabuki syndrome (aka Niikawakuroki syndrome). Coordinates family directory. Literature, phone support, pen pals, moderated listserv and newsletter. Brochure in English and Spanish available.
Kabuki Syndrome Network
c/o Dean and Margot Schmiedge
8060 Struthers Cr
Regina, Saskatchewan, CANADA S4Y 1J3