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(BILINGUAL). International network. Founded 1997. Provides mutual support and information for families affected by Kabuki syndrome (aka Niikawakuroki syndrome). Coordinates family directory. Literature, phone support, pen pals, moderated listserv and newsletter. Brochure in English and Spanish available.
Kabuki Syndrome Network
8060 Struthers Cr.
Regina, Saskatchewan, CANADA S4Y 1J3
Voice: 306-543-8715 Margot or Dean Schmiedge