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Kabuki Syndrome

This information is provided as a resource and does not constitute an endorsement for any group. It is the responsibility of the reader to decide whether a group is appropriate for his/her needs. For evidence-based information on diseases, conditions, symptoms, treatment and wellness issues, continue searching this site.

Kabuki Syndrome Network

(BILINGUAL)_International network. Founded 1997. Provides mutual support and information for families affected by Kabuki syndrome (aka Niikawakuroki syndrome). Coordinates family directory. Literature, phone support, pen pals, moderated listserv and newsletter. Brochure in English and Spanish available.
Write:
Kabuki Syndrome Network
c/o Dean and Margot Schmiedge
8060 Struthers Cr
Regina, Saskatchewan, CANADA S4Y 1J3
Voice: 306-543-8715
Website: http://www.kabukisyndrome.com
E-mail: margot@kabukisyndrome.com
Verified: 7/17/2013

WebMD Medical Reference from the American Self-Help Clearinghouse

Last Updated: September 04, 2014
This information is provided as a resource and does not constitute an endorsement for any group.  It is the responsibility of the reader to decide whether a group is appropriate for his/her needs.  For evidence-based information on diseases, conditions, symptoms, treatment and wellness issues, continue searching this site.This information is not intended to replace the advice of a doctor. Healthwise disclaims any liability for the decisions you make based on this information.   

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