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Kabuki Syndrome

This information is provided as a resource and does not constitute an endorsement for any group. It is the responsibility of the reader to decide whether a group is appropriate for his/her needs. For evidence-based information on diseases, conditions, symptoms, treatment and wellness issues, continue searching this site.

Kabuki Syndrome Network

(BILINGUAL). International network. Founded 1997. Provides mutual support and information for families affected by Kabuki syndrome (aka Niikawakuroki syndrome). Coordinates family directory. Literature, phone support, pen pals, moderated listserv and newsletter. Brochure in English and Spanish available.
Write:
Kabuki Syndrome Network
8060 Struthers Cr.
Regina, Saskatchewan, CANADA S4Y 1J3
Voice: 306-543-8715 Margot or Dean Schmiedge
Website: http://www.kabukisyndrome.com
E-mail: margot@kabukisyndrome.com
Verified: 1/9/2013

WebMD Medical Reference from the American Self-Help Clearinghouse

Last Updated: February 25, 2014
This information is provided as a resource and does not constitute an endorsement for any group.  It is the responsibility of the reader to decide whether a group is appropriate for his/her needs.  For evidence-based information on diseases, conditions, symptoms, treatment and wellness issues, continue searching this site.This information is not intended to replace the advice of a doctor. Healthwise disclaims any liability for the decisions you make based on this information.   

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