This information is provided as a resource and does not constitute an endorsement for any group. It is the responsibility of the reader to decide whether a group is appropriate for his/her needs. For evidence-based information on diseases, conditions, symptoms, treatment and wellness issues, continue searching this site.
National network. 13 chapters. 24 affiliated groups. Founded 1995. Provides support and networking to persons with mitochondrial disease, a genetic degenerative disease, and their families. Promotes research and education for the diagnosis, treatment and cure. Local support groups, quarterly newsletter, information and referrals, library of medical publications, patient registry, phone help and annual symposium. Awards research grants. Help with starting local support groups. Online support available - contact email@example.com for information.
8085 Saltsburg Rd. Ste. 201
Pittsburgh, PA 15239