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National network. 13 chapters. 24 affiliated groups. Founded 1995. Provides support and networking to persons with mitochondrial disease, a genetic degenerative disease, and their families. Promotes research and education for the diagnosis, treatment and cure. Local support groups, quarterly newsletter, information and referrals, library of medical publications, patient registry, phone help and annual symposium. Awards research grants. Help with starting local support groups. Online support available - contact firstname.lastname@example.org for information.
8085 Saltsburg Rd. Ste. 201
Pittsburgh, PA 15239