This information is provided as a resource and does not constitute an endorsement for any group. It is the responsibility of the reader to decide whether a group is appropriate for his/her needs. For evidence-based information on diseases, conditions, symptoms, treatment and wellness issues, continue searching this site.
International network. Founded 1984. Provides information and mutual support for families of children with Sotos syndrome. Newsletter, phone support, annual conferences, information and referrals.
Sotos Syndrome Support Association
P.O. Box 4626
Wheaton, IL 60189