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    Sudden Unexplained Death in Childhood

    Important
    It is possible that the main title of the report Sudden Unexplained Death in Childhood is not the name you expected. Please check the synonyms listing to find the alternate name(s) and disorder subdivision(s) covered by this report.

    Synonyms

    • SUDC

    Disorder Subdivisions

    • None

    General Discussion

    Sudden unexplained death in childhood (SUDC) is defined as the sudden death of a child greater than one year of age that remains unexplained after a thorough case investigation, including performance of a complete autopsy, examination of the death scene, and review of the clinical history.

    SUDC deaths have occurred at the following sites:

    Death at home, history provided: 79%
    Crib or bassinet: 54%
    Adult bed: 36%

    The placed and found positions were as follows:

    Placed supine, side, prone*: 10%, 2%, 3%
    Found prone: 89%
    Found face position: down, side: 10%, 8%
    Co-sleeping, sweating when found: 3%, 1%

    *applies only to youngest children

    Resources

    First Candle-SIDS Alliance
    2105 Laurel Bush Road
    Suite 201
    Bel Air, MD 21015
    Tel: (443)640-1049
    Tel: (800)221-7437
    Email: info@firstcandle.org
    Internet: http://www.firstcandle.org

    National Sudden and Unexpected Infant/Child Death Resource Center
    2115 Wisconsin Avenue, NW
    Suite 601
    Washington, DC 20007
    Tel: (202)687-7466
    Fax: (202)784-9777
    Tel: (866)866-7437
    Email: info@sidscenter.org
    Internet: http://www.sidscenter.org

    NIH/National Institute of Neurological Disorders and Stroke
    P.O. Box 5801
    Bethesda, MD 20824
    Tel: (301)496-5751
    Fax: (301)402-2186
    Tel: (800)352-9424
    TDD: (301)468-5981
    Internet: http://www.ninds.nih.gov/

    SIDS Educational Services, Inc.
    PO Box 2426
    Hyattsville, MD 20784-0426
    Tel: (301)322-2620
    Fax: (301)322-9822
    Email: sidses@aol.com
    Internet: http://www.sidssurvivalguide.org

    NIH/National Institute of Child Health and Human Development
    31 Center Dr
    Building 31, Room 2A32
    MSC2425
    Bethesda, MD 20892
    Fax: (866)760-5947
    Tel: (800)370-2943
    TDD: (888)320-6942
    Email: NICHDInformationResourceCenter@mail.nih.gov
    Internet: http://www.nichd.nih.gov/

    Genetic and Rare Diseases (GARD) Information Center
    PO Box 8126
    Gaithersburg, MD 20898-8126
    Tel: (301)251-4925
    Fax: (301)251-4911
    Tel: (888)205-2311
    TDD: (888)205-3223
    Internet: http://rarediseases.info.nih.gov/GARD/

    CJ Foundation for SIDS, Inc.
    HUMC: WFAN Pediatric Center
    30 Prospect Avenue
    Hackensack, NJ 07601
    Tel: (551)996-5301
    Fax: (551)996-5326
    Tel: (888)825-7437
    Email: info@cjsids.org
    Internet: http://www.cjsids.org

    Sudden Unexplained Death In Childhood Program
    c/o CJ Foundation for SIDS
    The Don Imus WFAN Pediatric Center
    30 Prospect Ave.
    Hackensack, NJ 07601
    Tel: (201)996-5080
    Fax: (201)996-5326
    Tel: (800)620-7832
    Email: info@sudc.org
    Internet: http://www.sudc.org

    For a Complete Report:

    This is an abstract of a report from the National Organization for Rare Disorders (NORD). A copy of the complete report can be downloaded free from the NORD website for registered users. The complete report contains additional information including symptoms, causes, affected population, related disorders, standard and investigational therapies (if available), and references from medical literature. For a full-text version of this topic, go to www.rarediseases.org and click on Rare Disease Database under "Rare Disease Information".

    The information provided in this report is not intended for diagnostic purposes. It is provided for informational purposes only. NORD recommends that affected individuals seek the advice or counsel of their own personal physicians.

    It is possible that the title of this topic is not the name you selected. Please check the Synonyms listing to find the alternate name(s) and Disorder Subdivision(s) covered by this report

    This disease entry is based upon medical information available through the date at the end of the topic. Since NORD's resources are limited, it is not possible to keep every entry in the Rare Disease Database completely current and accurate. Please check with the agencies listed in the Resources section for the most current information about this disorder.

    For additional information and assistance about rare disorders, please contact the National Organization for Rare Disorders at P.O. Box 1968, Danbury, CT 06813-1968; phone (203) 744-0100; web site www.rarediseases.org or email orphan@rarediseases.org

    Last Updated: 4/28/2010
    Copyright 2010 National Organization for Rare Disorders, Inc.

    WebMD Medical Reference from the National Organization for Rare Disorders

    Last Updated: May 28, 2015
    This information is not intended to replace the advice of a doctor. Healthwise disclaims any liability for the decisions you make based on this information.

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