cystic fibrosis problems or
complications occur when the
respiratory system or
digestive system becomes damaged. Most people who have complications will need to stay
in the hospital. Treatment for complications may include medicines or surgery,
depending on the person's age and symptoms.
The doctor may do tests, such as a chest
X-ray, to know what kinds of problems your child is having.
Other treatments for complications from cystic
fibrosis may include:
- Blood transfusions and medicines to treat the bleeding (embolization therapy),
if your child is coughing up large amounts of blood. Coughing up small amounts
of blood is normal for people who have cystic fibrosis. But coughing up large
amounts of blood can be life-threatening.
- Placement of a semipermanent intravenous (IV) tube to give your child antibiotics frequently without having to place a line
in the vein each time.
Home care for cystic fibrosis
treatment is very important. It can make a person with cystic fibrosis feel better and live longer. Here are some things you can do at home, or help your child do, to help prevent
more serious health problems like lung infections:
As children with cystic fibrosis get older, it is
important for them to learn how to help care for themselves. Even though it can
be hard to follow a treatment plan every day, there are many benefits of home
treatments. Skipping a treatment may not make a person feel worse right away. But it raises the chances of having more serious problems later.
Handling the challenges of caring for a child who has cystic fibrosis can be difficult.
Take good care of yourself,
physically and emotionally, so that you can give your child the best care possible.
Many people with cystic fibrosis and their families need
emotional support to help them live with this genetic disease.
counseling, and education about the disease can be
very helpful not only for people who have cystic fibrosis but also for their
It is also important to talk about the kind of medical procedures you
want or don't want for yourself or for your child.
Research for new treatments
Medical researchers are looking at gene transfer therapy. It involves introducing
healthy genes into the lung cells of people who have cystic fibrosis.
Researchers are also investigating protein repair therapy, or protein
assist therapy. This treatment involves taking medicines that help the defective
protein work more normally to allow a small amount of salt and water to move
out of cells.
Gene transfer and protein repair therapies are in
the experimental, developmental stages. Talk to your doctor about clinical trials for these and other new treatments being studied.