The Children's PKU Network is a nonprofit organization that offers resources and support for people who have phenylketonuria.
Genetics Home Reference, U.S. National Library of
8600 Rockville Pike
Bethesda, MD 20894
The Genetics Home Reference provides information on hundreds of genetic conditions. The website has many tools for learning about human genetics and the way genetic changes can cause
disease. It also has links to additional resources for people who
have genetic conditions and for their families.
March of Dimes
1275 Mamaroneck Avenue
White Plains, NY 10605
The March of Dimes tries to improve the health of babies
by preventing birth defects, premature birth, and early death. March of Dimes
supports research, community services, education, and advocacy to save babies'
lives. The organization's website has information on premature birth, birth
defects, birth defects testing, pregnancy, and prenatal care.
National Institute of Child Health and Human
P.O. Box 3006
Rockville, MD 20847
The National Institute of Child Health and Human
Development (NICHD) is part of the U.S. National Institutes of Health. The
NICHD conducts and supports research related to the health of children, adults,
and families. NICHD has information on its Web site about many health topics.
And you can send specific requests to information specialists.
National PKU News
6869 Woodlawn Avenue NE
Seattle, WA 98115
This organization creates a newsletter and
develops other materials (such as diet information and recipes) for
people with phenylketonuria (PKU) and for their families. The website includes
treatment and support group information, an email discussion group,
and links to related websites.