This information is provided as a resource and does not constitute an endorsement for any group. It is the responsibility of the reader to decide whether a group is appropriate for his/her needs. For evidence-based information on diseases, conditions, symptoms, treatment and wellness issues, continue searching this site.
International network. Aprox. 75 groups. Founded 1996. Support and resource network for families coping with velo-cardio-facial syndrome (aka Shprintzen syndrome, 22q11 deletion syndrome, 22q11.2 deletion syndrome and DiGeorge syndrome). Provides family programs, online support, parent-to-parent networking, help in starting local face-to-face groups, educational materials, newsletter and annual conference.
Velo-Cardio-Facial Sydrome Ed. Fdn
P.O. Box 12591
Dallas, TX 75225