National Cancer Institute (NCI)
1-800-4CANCER
http://cancernet.nci.nih.gov/patient.htm
If you are newly-diagnosed with cancer, this should be the first resource you call. NCI is a government agency that provides information and referrals for cancer needs. When you dial the 800-number, select "option 3" for an information specialist who will transfer your call to one of NCI's nineteen Regional Offices. NCI also offers a very broad range of cancer information and publications, including their Physician Data Query (PDQ) service. Ask for a PDQ search of the latest clinical trials, which will give you an instant snapshot of current cancer research. Their online component, CancerNet, is a very helpful and immediate service.
American Cancer Society
1599 Clifton Northeast
Atlanta GA 30329-4251
1-800-ACS-2345
http://www.cancer.org/bottom.html
Your local or state ACS chapter is listed in the White Pages of your phone book. Local chapters are able to address individual needs and requests better than the national organization. The ACS Web site is also an excellent resource for people coping with all types of cancer.
CANCERVIVE
6500 Wilshire Boulevard Suite 500
Los Angeles CA 90048
(213) 203-9232
This organization sponsors support groups for everyday concerns of cancer survivors. They can put you in touch with a local group or give you information to help you start your own.
The Prostate Cancer InfoLink
http://www.comed.com/Prostate/
This is a comprehensive site that contains a good range of information covering symptoms, diagnosis, treatment, and a term dictionary, as well as providing support information, personal narratives, and a question answering service, "Ask Arthur." It's a great starting point in the search for specific information on prostate cancer.
Wellness Web Prostate Cancer Center
http://www.wellnessweb.com/PROSTATE/prostate.htm
Wellness Web is another very comprehensive site with many types of information and services. These include patient and treatment information, personal narratives, and advice from other prostate cancer patients. There is also an extensive glossary, a list of resources, including those relating to clinical trials, and a service that monitors relevant newsgroups and relays the information found in them.
Fermilab Neutron Therapy Facility
http://adwww.fnal.gov/www/ntf/ntf_home.html
This site discusses a new method of treatment for prostate cancer, and provides contact information for those who want to learn more about this treatment.
Prostate Pointers
http://rattler.cameron.edu/prostate.html
This page is a list of pointers to Internet sites that deal with prostate cancer. It's a good place to begin browsing the web pages of various cancer research sites, of which there are many. Lots of great links here to sites that deal with all kinds of prostate cancer issues.
Cancer Care, Inc.
1180 Avenue of the Americas
New York, NY 10036
(212-302-2400)
1-800-813-HOPE (4673) toll-free
A non-profit social service agency providing information from social workers on topics including medical referrals and seeking second opinions, counseling and support groups, financial assistance information for non-medical expenses, home visits by trained volunteers, and referrals to local services such as housekeeping and health aids. Cancer Care is focused in New York, but provides as much information as they have available to people calling from other areas. They are currently striving to develop local/area information and support resources nationwide.
OncoLink: the University of Pennsylvania Cancer Resource
http://oncolink.upenn.edu/
Oncolink provides a wide array of information from the government (National Cancer Institute) and some periodical literature. It also provides a direct link with some of the relevant newsgroups that discuss cancer. While not comprehensive, this site does have a lot of information that won't be found in other sites.
CancerGuide
http://cancerguide.org/
Here you will find general information about how and why individuals should research their cancer. Basic information on various types of cancer and their treatments are covered as well.
Internet Newsgroups
Newsgroups are discussions that take place on the Internet. They can be accessed via the Internet by searching for "newsgroups" and then selecting the appropriate group. Depending on your 'news reader' program (usually part of your Internet Service Provider's software package), the way that you communicate with these groups will vary.
sci.med.diseases.cancer
alt.support.cancer
alt.support.cancer.prostate
alt.answers
sci.answers
Listservs
A listserv is a discussion of a particular topic, which may be mediated by a specific individual. Listservs are conducted entirely through email, although they may be archived in other parts of the Internet. These listservs have a particularly high volume of interaction, which will fill up your email-box, so you may want to try them one at a time. When you subscribe you will receive a message that confirms your subscription. This message will also contain the information about how to unsubscribe -- this is vital, so store it in a good place on your mail server.
Prostate Cancer Listserv
To subscribe send an email message to listserv@sjuvm.stjohns.edu
Leave the subject line blank and in the body of the message type:
subscribe prostate your first and last names, e.g.
subscribe prostate John Doe
The Prostate Cancer Listserv is archived by subject at the Prostate Infolink site:
http://comed.com/Prostate/Problems
CANCER-L Listserv
This listserv can be used for general cancer information as well as specific prostate information.
To subscribe send an email message to LISTSERV@WVNVM.WVNET.EDU
Leave the subject line blank and in the body of the message type:
subscribe prostate your first and last names, e.g.
subscribe prostate John Doe
or
subscribe cancer your first and last names, e.g.
subscribe cancer John Doe