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Web Links and Support Resources: Chronic Fatigue Immune Dysfunction Syndrome

Organizations and Web Sites

National CFIDS Foundation (NCF)

103 Aletha Road
Needham, MA 02492
(781) 449-3535
(781) 449-8606 fax

http://www.cfidsfoundation.org/

The goals of this foundation are to provide information, education, and support to those people who have Chronic Fatigue and Immune Dysfunction Syndrome (CFIDS) as well as other related illnesses like fibromyalgia and "Gulf War Syndrome." They provide a newsletter (parts of which are available on their web site), recent medical news, and transcripts of radio interviews about CFIDS.

CFIDS Association of America

P.O Box 220398
Charlotte, N.C. 28222-0398
(704)365-9755
(800)-44-CFIDS

http://www.cfids.org

This organization advocates on behalf of CFIDS patients, lobbying for more medical research about and greater public awareness of Chronic Fatigue and Immune Dysfunction Syndrome. They also publish a quarterly newsletter, sponsor support groups nationwide, and offer access to a large assortment of books, tapes, and other materials relating to CFIDS. Their web site features links to many different CFIDS online resources.

Centers for Disease Control and Prevention

CFS Home Page
24-hour CFS voice info line: (888)-232-3228

http://www.cdc.gov/ncidod/diseases/cfs/cfshome.htm

This U.S. government site has some interesting articles about CFS, as well as news of medical and epidemiological studies, abstracts of relevant journal articles, and information about support groups.

Listservs

A listserv is a discussion of a particular topic, which may be mediated by a specific individual. Listservs are conducted entirely through email, although they may be archived in other parts of the Internet. When you subscribe you will receive a message that confirms your subscription. This message will also contain the information about how to unsubs cribe ? this is vital, so store it in a good place on your mail server.

CFS-L

CFS-L is an Internet support group for people who have Chronic Fatigue Syndrome.

To subscribe send an email message to listserv@MAELSTROM.STJOHNS.EDU

Leave the subject line blank and in the body of the message type:

SUB CFS-L Your Name

e.g.

SUB CFS-L Jane Smith

CFS-NEWS

CFS-NEWS emphasizes medical news about Chronic Fatigue Syndrome. It is published up to four times per month.

To subscribe send an email message to listserv@MAELSTROM.STJOHNS.EDU

Leave the subject line blank and in the body of the message type:

SUB CFS-NEWS Your Name

e.g.

SUB CFS-NEWS Jane Smith

CO-CURE

The goal of this list is to foster cooperation in finding cures for both fibromyalgia and CFIDS. See also CO-CURE's web site at
http://www.co-cure.org/
as it contains the useful archives of this mailing list, as well as other features.

To subscribe send an email message to

listserv@listserv.nodak.edu

Leave the subject line blank and in the body of the message type:

SUBSCRIBE CO-CURE Your Name

e.g.

SUBSCRIBE CO-CURE Jane Smith

Internet Newsgroups

Newsgroups are discussions that take place on the Internet. Depending on your 'news reader' program (usually part of your Internet Service Provider's software package), the way that you communicate with these groups will vary.

alt.med.cfs

 


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