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    Celiac Disease

    Important
    It is possible that the main title of the report Celiac Disease is not the name you expected. Please check the synonyms listing to find the alternate name(s) and disorder subdivision(s) covered by this report.

    Synonyms

    • Celiac Sprue
    • Gluten-sensitive Enteropathy
    • Nontropical Sprue
    • CD
    • Gluten Enteropathy
    • GSE

    Disorder Subdivisions

    • None

    General Discussion

    Celiac disease is a digestive disorder characterized by intolerance to dietary gluten, which is a protein found in wheat, rye, and barley. Consumption of gluten leads to abnormal changes of the mucous membrane (mucosa) of the small intestine, impairing its ability to properly absorb fats and additional nutrients during digestion (intestinal malabsorption). Symptom onset may occur during childhood or adulthood. In affected children, such symptoms may include diarrhea, vomiting, weight loss or lack of weight gain, painful abdominal bloating, irritability, and/or other abnormalities. Affected adults may have diarrhea or constipation; abdominal cramping and bloating; abnormally bulky, pale, frothy stools that contain increased levels of fat (steatorrhea); weight loss; anemia; muscle cramping; bone pain; exhaustion (lassitude); and/or other symptoms and findings. Although the exact cause of celiac disease is unknown, genetic, immunologic, and environmental factors are thought to play some role.

    Resources

    Gluten Intolerance Group of North America
    31214 124th Ave SE
    Auburn, WA 98092
    Tel: (253)833-6655
    Fax: (253)833-6675
    Email: info@gluten.net
    Internet: http://www.gluten.net

    Celiac Sprue Association
    P.O. Box 31700
    Omaha, NE 68131-0700
    USA
    Tel: (402)558-0600
    Fax: (402)643-4108
    Tel: (877)272-4272
    Email: celiacs@csaceliacs.org
    Internet: http://www.csaceliacs.org

    NIH/National Institute of Diabetes, Digestive & Kidney Diseases
    Office of Communications & Public Liaison
    Bldg 31, Rm 9A06
    31 Center Drive, MSC 2560
    Bethesda, MD 20892-2560
    Tel: (301)496-3583
    Email: NDDIC@info.niddk.nih.gov
    Internet: http://www2.niddk.nih.gov/

    Celiac Disease Foundation
    20350 Ventura Blvd
    Ste 240
    Woodland Hills, CA 91364
    USA
    Tel: (818)716-1513
    Fax: (818)267-5577
    Email: cdf@celiac.org
    Internet: http://www.celiac.org

    R.O.C.K. (Raising Our Celiac Kids)
    3527 Fortuna Ranch Rd
    Encinitas, CA 92024
    USA
    Tel: (858)395-5421
    Fax: (858)756-0431
    Email: info@celiackids.com
    Internet: http://www.celiackids.com

    Genetic and Rare Diseases (GARD) Information Center
    PO Box 8126
    Gaithersburg, MD 20898-8126
    Tel: (301)251-4925
    Fax: (301)251-4911
    Tel: (888)205-2311
    TDD: (888)205-3223
    Internet: http://rarediseases.info.nih.gov/GARD/

    Center for Peripheral Neuropathy
    University of Chicago
    5841 South Maryland Ave, MC 2030
    Chicago, IL 60637
    Tel: (773)702-5659
    Fax: (773)702-5577
    Internet: http://peripheralneuropathycenter.uchicago.edu/

    Madisons Foundation
    PO Box 241956
    Los Angeles, CA 90024
    Tel: (310)264-0826
    Fax: (310)264-4766
    Email: getinfo@madisonsfoundation.org
    Internet: http://www.madisonsfoundation.org

    Autoimmune Information Network, Inc.
    PO Box 4121
    Brick, NJ 08723
    Fax: (732)543-7285
    Email: autoimmunehelp@aol.com

    International Scleroderma Network
    7455 France Ave So #266
    Edina, MN 55435-4702
    Tel: (952)583-5735
    Tel: (800)564-7099
    Email: isn@sclero.org
    Internet: http://www.sclero.org

    European Society for Immunodeficiencies
    1-3 rue de Chantepoulet
    Geneva, CH 1211
    Switzerland
    Tel: 410229080484
    Fax: 41229069140
    Email: esid@kenes.com
    Internet: http://www.esid.org

    National Foundation for Celiac Awareness
    P.O. Box 544
    224 South Maple Street
    Ambler, PA 19002
    Tel: (215)325-1306
    Fax: (215)643-1707
    Email: info@celiaccentral.org
    Internet: http://www.CeliacCentral.org

    CORE
    3 St. Andrews Place
    London, NW1 4LB
    United Kingdom
    Tel: 02074860341
    Fax: 02072242012
    Email: info@corecharity.org.uk
    Internet: http://www.corecharity.org.uk

    Coeliac Society of Australia Inc.
    Suite 1, 41 - 45 Pacific Highway
    Waitara, NSW 2077
    Australia
    Tel: 0294875088
    Fax: 0294875177
    Tel: 1800458836
    Email: info@coeliacsociety.com.au
    Internet: http://www.coeliacsociety.com.au

    Medical Home Portal
    Dept. of Pediatrics
    University of Utah
    P.O. Box 581289
    Salt Lake City, UT 84158
    Tel: (801)587-9978
    Fax: (801)581-3899
    Email: mindy.tueller@utah.edu
    Internet: http://www.medicalhomeportal.org

    For a Complete Report:

    This is an abstract of a report from the National Organization for Rare Disorders (NORD). A copy of the complete report can be downloaded free from the NORD website for registered users. The complete report contains additional information including symptoms, causes, affected population, related disorders, standard and investigational therapies (if available), and references from medical literature. For a full-text version of this topic, go to www.rarediseases.org and click on Rare Disease Database under "Rare Disease Information".

    The information provided in this report is not intended for diagnostic purposes. It is provided for informational purposes only. NORD recommends that affected individuals seek the advice or counsel of their own personal physicians.

    It is possible that the title of this topic is not the name you selected. Please check the Synonyms listing to find the alternate name(s) and Disorder Subdivision(s) covered by this report

    This disease entry is based upon medical information available through the date at the end of the topic. Since NORD's resources are limited, it is not possible to keep every entry in the Rare Disease Database completely current and accurate. Please check with the agencies listed in the Resources section for the most current information about this disorder.

    For additional information and assistance about rare disorders, please contact the National Organization for Rare Disorders at P.O. Box 1968, Danbury, CT 06813-1968; phone (203) 744-0100; web site www.rarediseases.org or email orphan@rarediseases.org

    Last Updated: 3/28/2008
    Copyright 1986, 1989, 1992, 1996, 1999, 2000, 2002, 2004 National Organization for Rare Disorders, Inc.

    WebMD Medical Reference from the National Organization for Rare Disorders

    Last Updated: May 28, 2015
    This information is not intended to replace the advice of a doctor. Healthwise disclaims any liability for the decisions you make based on this information.

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