Reviewer: peternguyen, 45-54 Male on Treatment for 5 to less than 10 years (Patient)

Comment:
I have take this dedication since 2006 but on an off, my reading is in 600-750 right now, always rapid heartbeat but is ok, my liver hurt at time,my spleen hurt too at time,i sometime feel yucky and confusion sometime.my doctor told me 5% of ET patient will develope leukimia ,I hope he's wrong but I wonder how long can ET patient live? I red the review and some still alive after 18years that is ve ... Show Full Comment

Comment:
I have take this dedication since 2006 but on an off, my reading is in 600-750 right now, always rapid heartbeat but is ok, my liver hurt at time,my spleen hurt too at time,i sometime feel yucky and confusion sometime.my doctor told me 5% of ET patient will develope leukimia ,I hope he's wrong but I wonder how long can ET patient live? I red the review and some still alive after 18years that is very good. good luck to all of you.
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Reviewer: 65-74 Male on Treatment for 2 to less than 5 years (Patient)

Comment:
i am on agrylin 3 years went from 100,000 down to 397,000

Comment:
i am on agrylin 3 years went from 100,000 down to 397,000
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Reviewer: dkb, 45-54 Female on Treatment for 5 to less than 10 years (Patient)

Comment:
I started out using Hydrea until I could no longer obtain it. My doctor switched me to Agrylin which I have been using for about 8 years. I do have rapid heartbeats and some hair loss but nothing I can't live with. I take .5mg 4 times a day. My platelet count has come down from 1.5mg to 400,000mg.

Comment:
I started out using Hydrea until I could no longer obtain it. My doctor switched me to Agrylin which I have been using for about 8 years. I do have rapid heartbeats and some hair loss but nothing I can't live with. I take .5mg 4 times a day. My platelet count has come down from 1.5mg to 400,000mg.
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Reviewer: 55-64 Female on Treatment for 10 years or more (Patient)

Comment:
I have been taking this for about 15 years. It controls my platelets. 8 years ago I had a bloody nose that would not stop and I was in the hospital for 5 dyas. Since then I stopped taking aspirin since I feel it causes bleeding in combo with agrlyn. I now have lyme disease that has become chronic and my immune system numbers are very low even when I do not feel too bad. I read somewhere that lyme ... Show Full Comment

Comment:
I have been taking this for about 15 years. It controls my platelets. 8 years ago I had a bloody nose that would not stop and I was in the hospital for 5 dyas. Since then I stopped taking aspirin since I feel it causes bleeding in combo with agrlyn. I now have lyme disease that has become chronic and my immune system numbers are very low even when I do not feel too bad. I read somewhere that lyme disease does not mix well with the spleen. I wonder if anyone else has had this experience. Before I took this medicine I took hydroxea which made very very tired. Agrlyn makes me tired and my fingers tingle when cold. I do not take it with caffeine and I take it after meals and well before bedtime to decrease the plapitations.
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Reviewer: happyone, 45-54 Female on Treatment for 10 years or more (Patient)

Comment:
I have been taking Agrylin for 12 years. Side effects of palpitations and shortness of breath are tolerable. I take propanolol as needed for the rapid heart beat. I am surprised to read about 1 patient on this site who said she is taking 6 x .5mg twice a day. Read the Dosage Instructions. I believe the maximum dosage at one time is 2.5mg. I find that a dosage of 1mg at a time dramatically red ... Show Full Comment

Comment:
I have been taking Agrylin for 12 years. Side effects of palpitations and shortness of breath are tolerable. I take propanolol as needed for the rapid heart beat. I am surprised to read about 1 patient on this site who said she is taking 6 x .5mg twice a day. Read the Dosage Instructions. I believe the maximum dosage at one time is 2.5mg. I find that a dosage of 1mg at a time dramatically reduces the side effects.
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