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    Read user comments about the side effects, benefits, and effectiveness of Rilutek oral.

    Overall User Ratings

    17 Total User Reviews

    User Reviews

    1-5 of 16 Next»
    Condition: Lou Gehrig's Disease
    10/13/2015 4:13:33 PM

    Reviewer: porchcat, 55-64 Female on Treatment for less than 1 month (Patient)

    Effectiveness

    Current Rating: 2

    Ease of Use

    Current Rating: 2

    Satisfaction

    Current Rating: 1

    Comment:
    I am very tired, constantly. Been taking it for 3 wks. but tiredness is very noticeable. I was taking walks, going to work, etc. - even driving. Doing less since the drug - walks are short 1-2 blocks, and then I have to rest. Not sure that I want to continue.

    Condition: Lou Gehrig's Disease
    5/23/2015 10:25:30 AM

    Reviewer: woundedwarrior1207, 65-74 Male on Treatment for 1 to 6 months (Patient)

    Effectiveness

    Current Rating: 1

    Ease of Use

    Current Rating: 5

    Satisfaction

    Current Rating: 1

    Comment:
    Seems to me that I have become significantly weaker during the month and a half I have been taking this drug (riluzole). Unable to determine if this weakness caused by disease or the drug. Others who have commented have similar question. Perhaps my doc will have an explanation during my next visit.

    Condition: Lou Gehrig's Disease
    3/23/2014 11:17:53 AM

    Reviewer: Lucille, 55-64 Female on Treatment for 6 months to less than 1 year (Patient)

    Effectiveness

    Current Rating: 3

    Ease of Use

    Current Rating: 4

    Satisfaction

    Current Rating: 3

    Comment:
    I can't determine how much it has helped me because I don't know how I would feel if I have never taken the drug. Overall all I had no side effects that were obvious. The only thing is how long should I take the drug? Does anybody know? I know it could affect my Liver - I have taken the drug for 7 months so far.

    Condition: Lou Gehrig's Disease
    10/10/2013 9:47:30 PM

    Reviewer: nurse with A:LS, 55-64 Female on Treatment for 1 to 6 months (Patient)

    Effectiveness

    Current Rating: 2

    Ease of Use

    Current Rating: 3

    Satisfaction

    Current Rating: 2

    Comment:
    I debated whether or not to take this drug. Will it give me 6 more months of disability for my family to deal with? or will it keep me independent for 6 more months? I started to take it and find it makes me weaker, which I do not need with this disease. It does make your mouth numb if it sits there. I have very little appetite, I'm thinking of going off it and let the disease run its cour ... Show Full Comment

    Condition: Lou Gehrig's Disease
    10/16/2012 6:36:58 PM

    Reviewer: 35-44 Male on Treatment for 1 to 6 months (Patient)

    Effectiveness

    Current Rating: 2

    Ease of Use

    Current Rating: 2

    Satisfaction

    Current Rating: 2

    Comment:
    On it for 4 months and after 3rd liver test increase had to quit. hope someone else has better luck

    1-5 of 16 Next»

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