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Read user comments about the side effects, benefits, and effectiveness of Rilutek oral.

Overall User Ratings

15 Total User Reviews

User Reviews

1-5 of 14 Next»
Condition: Lou Gehrig's Disease
3/23/2014 11:17:53 AM

Reviewer: Lucille, 55-64 Female on Treatment for 6 months to less than 1 year (Patient)

Effectiveness

Current Rating: 3

Ease of Use

Current Rating: 4

Satisfaction

Current Rating: 3

Comment:
I can't determine how much it has helped me because I don't know how I would feel if I have never taken the drug. Overall all I had no side effects that were obvious. The only thing is how long should I take the drug? Does anybody know? I know it could affect my Liver - I have taken the drug for 7 months so far.

Condition: Lou Gehrig's Disease
10/10/2013 9:47:30 PM

Reviewer: nurse with A:LS, 55-64 Female on Treatment for 1 to 6 months (Patient)

Effectiveness

Current Rating: 2

Ease of Use

Current Rating: 3

Satisfaction

Current Rating: 2

Comment:
I debated whether or not to take this drug. Will it give me 6 more months of disability for my family to deal with? or will it keep me independent for 6 more months? I started to take it and find it makes me weaker, which I do not need with this disease. It does make your mouth numb if it sits there. I have very little appetite, I'm thinking of going off it and let the disease run its cour ... Show Full Comment

Condition: Lou Gehrig's Disease
10/16/2012 6:36:58 PM

Reviewer: 35-44 Male on Treatment for 1 to 6 months (Patient)

Effectiveness

Current Rating: 2

Ease of Use

Current Rating: 2

Satisfaction

Current Rating: 2

Comment:
On it for 4 months and after 3rd liver test increase had to quit. hope someone else has better luck

Condition: Lou Gehrig's Disease
3/24/2012 7:44:12 AM

Reviewer: smallspuds, 55-64 Female on Treatment for 1 to 6 months (Patient)

Effectiveness

Current Rating: 3

Ease of Use

Current Rating: 4

Satisfaction

Current Rating: 2

Comment:
Using for three months. Second liver function test abnormal, third less so. Feeling more fatigued and seems to be increasing rather than maintaining former levels. Edema in my lower legs presumably because of more difficulty with mobility. Have developed insomnia over the last couple of weeks. I'm going to keep up until I see my doc in May, unless the insomnia continues or I get weaker. Then I ... Show Full Comment

Condition: Lou Gehrig's Disease
12/26/2011 11:51:08 PM

Reviewer: lucyosc, 55-64 Female on Treatment for less than 1 month (Patient)

Effectiveness

Current Rating: 2

Ease of Use

Current Rating: 4

Satisfaction

Current Rating: 3

Comment:
I do not know if it is doing anything for me. I have not experienced any side effects. I know that it isn't designed to do anything to the symptoms that I have now. It is designed to slow the progression of ALS.

1-5 of 14 Next»

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IMPORTANT: About This Section and Other User-Generated Content on WebMD

The opinions expressed in WebMD User-generated content areas like communities, reviews, ratings, or blogs are solely those of the User, who may or may not have medical or scientific training. These opinions do not represent the opinions of WebMD. User-generated content areas are not reviewed by a WebMD physician or any member of the WebMD editorial staff for accuracy, balance, objectivity, or any other reason except for compliance with our Terms and Conditions. Some of these opinions may contain information about treatment or uses of drug products that have not been approved by the U.S. Food and Drug Administration. WebMD does not endorse any specific product, service, or treatment.

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