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Read user comments about the side effects, benefits, and effectiveness of Hizentra SubQ.

Overall User Ratings

38 Total User Reviews

User Reviews

1-5 of 31 Next»
Condition: Primary Immune Deficiency Disorder
12/14/2014 3:28:11 PM

Reviewer: 75 or over Female on Treatment for 6 months to less than 1 year (Patient)

Effectiveness

Current Rating: 4

Ease of Use

Current Rating: 3

Satisfaction

Current Rating: 4

Comment:
I have been self-infusing Hizentra every 2 weeks for 6 months, and find the procedure quite easy to do now that I have been trained by a nurse. My immune system has improved greatly. However, I usually feel quite "off" for a day or two after treatment(I do take tylenol and allegra before each treatment), and now after reading other patient's comments, I realize the fatigue could be c ... Show Full Comment

Condition: Primary Immune Deficiency Disorder
9/23/2014 2:35:30 AM

Reviewer: farmgirl, 55-64 on Treatment for 6 months to less than 1 year (Patient)

Effectiveness

Current Rating: 5

Ease of Use

Current Rating: 5

Satisfaction

Current Rating: 5

Comment:
I have been using Hizentra for 43 weeks. I infuse sub q once weekly. For the first few weeks, I felt very tired and achy for a couple of days after treatment. I talked with the on-call pharmacist who recommended using a slower flow rate, from 900 to 600; made a tremendous improvement in side effects!! I can't say enough about my treatment plan...it has literally given my life back to me and my ... Show Full Comment

Condition: Primary Immune Deficiency Disorder
7/17/2014 2:45:26 PM

Reviewer: George Hoyt, 65-74 Male on Treatment for 1 to less than 2 years (Patient)

Effectiveness

Current Rating: 5

Ease of Use

Current Rating: 4

Satisfaction

Current Rating: 5

Comment:
Cancer treatment with Rituxain detroyed my immune system and gave me Erythrocitosis which causes my bones to produce too many red blood cells. I have to have phlebotomies once a month to prevent strokes. But I am a huge fan of Hyzentra. It has given me my life back again. Without it I had pneumonia or brochitus almost all the time. Now that I have taken Hyzentra for 70 weeks I am so grateful ... Show Full Comment

Condition: Primary Immune Deficiency Disorder
7/8/2014 11:32:58 AM

Reviewer: Ladydog1, 55-64 Female on Treatment for less than 1 month (Patient)

Effectiveness

Current Rating: 2

Ease of Use

Current Rating: 1

Satisfaction

Current Rating: 1

Comment:
Just wanted to add that I have had bruising also which I didn't realize was related until I saw other reviews. Also, this is only the second time I have used it and have had moderate to severe nausea from day 2-5. Supposed to start again in 2 days. Also have some mild itching at the sites. My doctor thinks larger needles may help with the site reactions but has anybody had nausea this long?

Condition: Primary Immune Deficiency Disorder
7/6/2014 3:38:03 PM

Reviewer: Ladydog1, 55-64 Female on Treatment for less than 1 month (Patient)

Effectiveness

Current Rating: 2

Ease of Use

Current Rating: 1

Satisfaction

Current Rating: 1

Comment:
I was on monthly IV Privigen which I tolerated well except for some fatigue the day after injection. Because of my new insurance, I have to do weekly self infusions of Hizentra. I am in the medical field and have had only 2 injections but find the whole process extremely ridiculous with 4 sites and spaghetti thin catheters. It is also time consuming: set up 50 minutes, infusion 2 hrs. The nex ... Show Full Comment

1-5 of 31 Next»

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The opinions expressed in WebMD User-generated content areas like communities, reviews, ratings, or blogs are solely those of the User, who may or may not have medical or scientific training. These opinions do not represent the opinions of WebMD. User-generated content areas are not reviewed by a WebMD physician or any member of the WebMD editorial staff for accuracy, balance, objectivity, or any other reason except for compliance with our Terms and Conditions. Some of these opinions may contain information about treatment or uses of drug products that have not been approved by the U.S. Food and Drug Administration. WebMD does not endorse any specific product, service, or treatment.

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