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Read user comments about the side effects, benefits, and effectiveness of Hizentra SubQ.

Overall User Ratings

29 Total User Reviews

User Reviews

1-5 of 24 Next»
Condition: Primary Immune Deficiency Disorder
4/17/2014 7:22:46 PM

Reviewer: mashleyu, 25-34 Female on Treatment for 2 to less than 5 years (Patient)

Effectiveness

Current Rating: 5

Ease of Use

Current Rating: 3

Satisfaction

Current Rating: 4

Comment:
I was on Hizentra for several years before switching to IVIG. I started out once weekly at 3 injection sites infusing for 4 hours. This proved to be too much for me (extreme aches and inability to function well at work). I talked to my doctor and we split the infusions to twice weekly at 2 injection sites still infusing each for 4 hours. This worked wonders. I premeditated with tylenol and benadry ... Show Full Comment

Condition: Primary Immune Deficiency Disorder
1/10/2014 3:31:06 PM

Reviewer: PatientzLikeUs, 35-44 Female on Treatment for 5 to less than 10 years (Patient)

Effectiveness

Current Rating: 5

Ease of Use

Current Rating: 5

Satisfaction

Current Rating: 2

Comment:
Used to be on Vivaglobin, then was switched to Hizentra the last 4-5 years or so. While I'm happy to not be sick all the time, I really don't like this stuff at all. I find I am very achy (joints, muscles, etc) and very tired all the time. I've learned how to deal with the fatigue, but the pain is something else. And yes, when you have an immune disorder, it opens the door to other imm ... Show Full Comment

Condition: Primary Immune Deficiency Disorder
6/21/2013 5:53:38 PM

Reviewer: jl, 55-64 Female on Treatment for 1 to less than 2 years (Patient)

Effectiveness

Current Rating: 4

Ease of Use

Current Rating: 4

Satisfaction

Current Rating: 4

Comment:
I had local reactions but now take advil and zyrtec beforehand and that helps alot with local swelling and irritation. It has boosted my immunity to colds and such, infuse once a week. Lately am crashing on day six so may want to go more often. Been on it for 1.5 years with few issues. I was checking here cause I just go a diffuse rash over half my body and wondered if from hizentra. Will check w ... Show Full Comment

Condition: Primary Immune Deficiency Disorder
4/24/2013 9:20:35 AM

Reviewer: hcocchi, 65-74 Female on Treatment for 5 to less than 10 years (Patient)

Effectiveness

Current Rating: 4

Ease of Use

Current Rating: 4

Satisfaction

Current Rating: 4

Comment:
I have been on this medication for approx 5 years. Without it I have spent lots of time in the hospital. Since I have been on this 1 time a week, I have been much better. I have trouble with joint pain but I would rather the pain than the hospital.

Condition: Primary Immune Deficiency Disorder
3/6/2013 11:41:08 AM

Reviewer: sand123, 7-12 Male on Treatment for 1 to less than 2 years (Caregiver)

Effectiveness

Current Rating: 4

Ease of Use

Current Rating: 4

Satisfaction

Current Rating: 4

Comment:
My son is 11years old and has been on Hizentra for almost 2years. In this time he has been fatigued more than normal.Also his PFT is lower than when he was on his last medication.He bruises with every bump.I have expressed my concern to his physician and she's not as concerned as I am.I'm not sure this is related or not.If anyone out there has experienced these symptoms.I would greatly app ... Show Full Comment

1-5 of 24 Next»
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The opinions expressed in WebMD User-generated content areas like communities, reviews, ratings, or blogs are solely those of the User, who may or may not have medical or scientific training. These opinions do not represent the opinions of WebMD. User-generated content areas are not reviewed by a WebMD physician or any member of the WebMD editorial staff for accuracy, balance, objectivity, or any other reason except for compliance with our Terms and Conditions. Some of these opinions may contain information about treatment or uses of drug products that have not been approved by the U.S. Food and Drug Administration. WebMD does not endorse any specific product, service, or treatment.

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