Reviewer: Kelly Renai, 35-44 on Treatment for 1 to less than 2 years

Comment:
Ive been on Benlysta for almost 2 years now. It was added to plaquenil , methotrexate, gabapentin oxcarbenate just to name a few to help treat Lupus Lupus nephritis and Ra. I can tell you that yes the injections hurt but are worth it for me on injection days im sleepy an my eyes water to the point I can't see but doesn't last long an same as the next day but then I have 5 amazing days when ... Show Full Comment

Comment:
Ive been on Benlysta for almost 2 years now. It was added to plaquenil , methotrexate, gabapentin oxcarbenate just to name a few to help treat Lupus Lupus nephritis and Ra. I can tell you that yes the injections hurt but are worth it for me on injection days im sleepy an my eyes water to the point I can't see but doesn't last long an same as the next day but then I have 5 amazing days when before I couldn't lift my own head at all. Its helping me feel normal again i had massive headaches for the first year an even got a migraine diagnosis with my left eye kaleidoscope vision on me but still im sticking with the overall outcome of how my body feels and i can't imagine my life without Benlysta it has changed my life for the better. Before my joints would catch and giveaway id fall. My Reynauds is even responding to injections. I believe that it took me bout a year before I truly noticed a difference so you gotta push through and stick with it. Im more active than Ive been in a decade im lupus lupus nephritis Ra and stage 3 kidney disease the combination im own is amazing an Benlysta just topped me off Im Thankful???
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Reviewer: Brooke, 19-24 Female on Treatment for 6 months to less than 1 year (Patient)

Comment:
The reason I started this drug was to help with my chronic malar rash, joint and muscle pain, and fatigue. I was hopeful the medication would do well, but after taking benlysta subcutaneously for 8 months I have seen minor changes. While my rash is less noticeable, it is still present. My issue is the constant brain fog and forgetfulness. It is almost like looking in from the outside of my life. V ... Show Full Comment

Comment:
The reason I started this drug was to help with my chronic malar rash, joint and muscle pain, and fatigue. I was hopeful the medication would do well, but after taking benlysta subcutaneously for 8 months I have seen minor changes. While my rash is less noticeable, it is still present. My issue is the constant brain fog and forgetfulness. It is almost like looking in from the outside of my life. Very strange. I became depressed, detached, anxious, and pretty much a different person. As a full time college student, it is not worth it for me to take if I can't really focus in class or remember small details. I took benlysta subcutaneously and boy do those injections hurt. It made me nervous everytime I had to inject myself because it burns so bad as the medicine is going in. I would bruise after every injection, and get leg pain and muscles spasms for the following couple of days. One benefit I did see was a burst of energy immediately after I injected myself, but it was almost like a feverish energy where I would get super sweaty and seemingly over exert myself and then the energy would soon go away and the extreme fatigue returned. I currently take methotrexate subcutaneously as well and it is much easier for me to inject myself with a needle, and much less painful than Benlysta. Benlysta didnt work out for me but I think it is worth a shot for lupus patients because of the limited number of treatments available.
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Reviewer: cccccasssss, 19-24 Female on Treatment for 6 months to less than 1 year (Patient)

Comment:
I have had severe lupus for about 4-5 years now. I just started benlysta about 6 months ago. This has been the only thing that has actually helped me! The first few months were rough. I would feel bad the day after I got the infusion but now that I am on my 6th month, I hardly ever feel bad. I have so much energy and my joints never hurt! If you stick with benlysta it works! Like I said the first ... Show Full Comment

Comment:
I have had severe lupus for about 4-5 years now. I just started benlysta about 6 months ago. This has been the only thing that has actually helped me! The first few months were rough. I would feel bad the day after I got the infusion but now that I am on my 6th month, I hardly ever feel bad. I have so much energy and my joints never hurt! If you stick with benlysta it works! Like I said the first few months aren't the best, but if you give it time it works wonders!
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Reviewer: Mamajude, 45-54 on Treatment for less than 1 month (Patient)

Comment:
I hesitate to review, as I have only had 1 treatment. I am hopeful that this med will change my quality of life. My main discomfort with the infusion was I could feel a burning up my vein and my arm ached. I believe they are going to dilute and give it slower next time. After the infusion, I was exhausted. I slept for 2-3 days. I'm back to my lupusy self now. I'm cautiously optimistic tha ... Show Full Comment

Comment:
I hesitate to review, as I have only had 1 treatment. I am hopeful that this med will change my quality of life. My main discomfort with the infusion was I could feel a burning up my vein and my arm ached. I believe they are going to dilute and give it slower next time. After the infusion, I was exhausted. I slept for 2-3 days. I'm back to my lupusy self now. I'm cautiously optimistic that this med will do great things. I will review again in a few months ❤️
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Reviewer: Frawlsco, 45-54 on Treatment for less than 1 month (Patient)

Comment:
Immediately following my first infusion I had extreme fatigue and couldn't stay awake. I literally slept for 3 days.. woken by family in between to eat. Then terrible pain in my thigh which spread to all of bones and joints. Agonizing pain .. pain meds took edge off but it was terrible. Blood test revealed elevated SED and was started on solomedrol which helped with bone pain. Then came severe ... Show Full Comment

Comment:
Immediately following my first infusion I had extreme fatigue and couldn't stay awake. I literally slept for 3 days.. woken by family in between to eat. Then terrible pain in my thigh which spread to all of bones and joints. Agonizing pain .. pain meds took edge off but it was terrible. Blood test revealed elevated SED and was started on solomedrol which helped with bone pain. Then came severe vertigo . Still extreme fatigue and now my muscles are in pain like muscle spasms.i was hopeful this would make me well .. I have been through 3 weeks of hell and wouldn't take this again. For some it's a miracle drug. I'm still waiting for my miracle drug.
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