Reviewer: jorjae1725, 35-44 Female on Treatment for 6 months to less than 1 year (Patient)

Comment:
I was diagnosed with SLE in 2011 and I started Benlysta infusions in 2012 and it has been a blessing to me. I suffer from severe joint pain, swelling, fatigue, and horrible migraines and since starting the Benlysta, after only 6 infusions, I feel like I am living my life again. My first few days after infusion are still a bit rough, then I start to feel amazing, about 4 days before my next infusti ... Show Full Comment

Comment:
I was diagnosed with SLE in 2011 and I started Benlysta infusions in 2012 and it has been a blessing to me. I suffer from severe joint pain, swelling, fatigue, and horrible migraines and since starting the Benlysta, after only 6 infusions, I feel like I am living my life again. My first few days after infusion are still a bit rough, then I start to feel amazing, about 4 days before my next infustion I start to feel I need a refill, but it has been the best thing to happen to me thus far. I do take Immuran and Plaquenil everyday as well, and this combination, has been the one for me, finally. It took a year and four months to find this amazing combination for me, so I just wanted everyone to know it, incase the Benlysta doesn't work on its own for you. Good Luck my sisters, and a few brothers ;), in battle... XOXO
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Reviewer: emval, 19-24 Female on Treatment for 6 months to less than 1 year (Patient)

Comment:
I was diagnosed with lupus in 2010. I had severe joint pain, fatigue and a rash on my arms and legs. In 2012 I began getting Benlysta infusions. At first I did not notice any change in my symptoms. After about 5 months I began to notice that my rash and joint pain were decreasing in severity. I have now been on Benlysta for 11 months and have seen a huge benefit from this drug. I no longer have an ... Show Full Comment

Comment:
I was diagnosed with lupus in 2010. I had severe joint pain, fatigue and a rash on my arms and legs. In 2012 I began getting Benlysta infusions. At first I did not notice any change in my symptoms. After about 5 months I began to notice that my rash and joint pain were decreasing in severity. I have now been on Benlysta for 11 months and have seen a huge benefit from this drug. I no longer have any joint pain, my rash is gone and my fatigue is noticeably lessened. I have had no negative side except that the night after the infusion I am really tired and nauseous, but feel fine by the next day.
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Reviewer: rnapier103, 35-44 Female on Treatment for 6 months to less than 1 year (Patient)

Comment:
I have suffered with SLE since 1994 & could no longer take plaquenil due to retinal toxicity. I also have RA & Fibromyalgia & am still on alot of meds for those. I do get insomnia & migranes after the infusion but it does taper off after a couple of days. I started the infusions in March 2012 & do feel better. Unfortunately, a week before my next infusion I start getting very ... Show Full Comment

Comment:
I have suffered with SLE since 1994 & could no longer take plaquenil due to retinal toxicity. I also have RA & Fibromyalgia & am still on alot of meds for those. I do get insomnia & migranes after the infusion but it does taper off after a couple of days. I started the infusions in March 2012 & do feel better. Unfortunately, a week before my next infusion I start getting very tired, achey, etc. I wish it was not every 28 days I would rather have it every 3 weeks but that is not the case. I am pleased with the results thus far I just wish I didn't have other issues other than the lupus.
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Reviewer: Dawn, 45-54 Female on Treatment for 1 to less than 2 years (Patient)

Comment:
I just finished my 12th month of Benlysta. I have a life back, I do have extreme fatigue the first 24-48 hours after the infusion. I am then pain free and clear headed for about 3 weeks. I go down hill for the last 4-5 days before the next med dose. If I had any complaints about Benlysta it would be I wish it lasted the whole month. 10 years with SLE, first time my blood pressure is normal, my ... Show Full Comment

Comment:
I just finished my 12th month of Benlysta. I have a life back, I do have extreme fatigue the first 24-48 hours after the infusion. I am then pain free and clear headed for about 3 weeks. I go down hill for the last 4-5 days before the next med dose. If I had any complaints about Benlysta it would be I wish it lasted the whole month. 10 years with SLE, first time my blood pressure is normal, my breathing is normal, brain fog has lifted, and my joint pain is minimal. Thank you
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Reviewer: Lilly, 55-64 on Treatment for 1 to less than 2 years (Patient)

Comment:
Started December2011. I do notice a big difference in fatigue. My joint pain is somewhat better. The drawbacks for me have been insomina and migraine.

Comment:
Started December2011. I do notice a big difference in fatigue. My joint pain is somewhat better. The drawbacks for me have been insomina and migraine.
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